I have to say I feel sad. I didn’t want to do much this weekend. I didn’t really want to talk much this weekend. I kind of wanted to hide away. My uncle’s death, my friend’s son, my friend’s sister, it all happened within two weeks of each other. So much sadness. I was so sad for my friends but my uncle hit me really hard. I didn’t want to talk about it the other blog because I wanted to…
I had my first big outing yesterday. I went with my stepdad to take Zoey to the vet. I wasn’t driving but I’ve been a passenger many times while he drives. I even went into the vet with Zoey. I saw people other than my family and close friends. That was a big deal. Thankfully Zoey is doing better. She will be on gabapentin for an extended period of time, possibly her life. I told her I have gabapentin on…
I am still making shocking improvements. I walked my hallway in PT. I haven’t done that since last year. https://multipleexperiences.org/2021/06/18/walking-again/. I at one point had a goal to not use the wheelchair in the condo anymore. As much as I would like to believe this is still an attainable goal, it is far down on my goal list. I was amazed I have been able to walk again at all. It took almost 30 minutes to walk roughly 50 feet,…
It has taken me almost 6 months but I finally did it. I GOT UP FROM MY COMFY CHAIR. I got up by myself. I actually started standing up when my therapist was a few feet away from me. I didn’t want anyone to touch me. I knew I could get up. I didn’t want to have that hand on me for guidance. I wanted my victory. I deserved my victory. I know the walking was the biggest thing to…
I’m happy to report I haven’t felt any side effects from the infusion the other day. https://multipleexperiences.org/2022/05/06/rituxan-infusion-successful-2/. I might feel slightly more tired but it hasn’t stopped me. On both Saturday and Sunday, I did an actual workout from my bed. I put on one of my favorite cardio exercises programs from YouTube. It is a workout from Adapt to Perform. https://youtu.be/qbFvZEPTXDk. I had my Bionic Gym on at a high intensity, picked up a pole and turned on my…
I’m better. No more fevers. My breathing is back to normal. I’m completely done with antibiotics. I have no more signs of the pneumonia. Great news. Yes it is. Yet the aftermath is as I expected. I was weakened from being in a bed for 1 1/2 months on top of my multiple sclerosis symptoms worsening. I had no time to adjust to my new body because I was so sick. I wasn’t focusing on my MS while I had…
I am still here, barely. I got home from the rehab last Wednesday. It has been rough!! I fell 4 times within the first 12 hours. My strength was significantly worse than I realized. My legs couldn’t hold me up. I realized they didn’t have the strength to push from a seated position to a stand. I was bed bound. This dark cloud came over my world. I refused to talk to anyone. I cried. I am always fighting multiple…
Inconclusive. My bladder test was inconclusive. They said that the sample contained bacteria in their that couldn’t have come from the urine alone. I was thrilled I got urine in the cup. That was a challenge in itself for someone with multiple sclerosis and bladder issues. I even was able to use the little handy wipe they give you before you give the sample. I was so proud of myself that day. So much for that gold star. Thank goodness…
