High dose biotin for MS month 6
I just finished my six month taking high dose biotin. I’m taking 300mg per day as was done in the MS clinical trial. You have to get this higher dosage from a specialty pharmacy. I get mine from Ace Pharmacy online. I was hoping to have a link on my side bar from Ace pharmacy, but I we haven’t linked up yet. This is the website.
https://highdosebiotin.net/about-us/
You can call and speak to them, the people there are extremely knowledgable and friendly or you can just place your order online. The more months you buy, the cheaper it is. You need at least 3-6 months or sometimes more to see results. I’ve blogged a number of times on high-dose biotin and there’s a reason, because I honestly believe from the bottom my heart it works. At my last doctors appointment, my walking was once again timed. The time walking doesn’t really mean much in the scheme of things, but the time was still 7 seconds improved then I ever walked. However, once my legs fatigue, I can’t walk well no matter what. On my good days, when I’m rested, my legs are as good as they can be and I attribute that to the biotin. My neurologist actually laughed at me and said could it maybe be the Rituxan? Sure it could be the Rituxan, the alpha lipoic acid, the physical therapy, a lot of things were started at the same time, but I talk to other MS people taking biotin who have similar results so my gut feeling is it the biotin. One MS friend taking it said not only is it helping with the walking, what she notices it helps with the neuropathy pain in her legs and feet. If I can say anything about anything I’ve taken for MS I say this about biotin, it’s a vitamin what harm can it do to try? I will list the other blogs I’ve written on the subject which will have the link to the clinical study for biotin with MS.
https://multipleexperiences.org/2016/10/24/high-dose-biotin-with-progressive-ms-a-patients-review/
https://multipleexperiences.org/2017/01/03/high-dose-biotin-in-multiple-sclerosis-month-3/
https://multipleexperiences.org/2017/02/24/high-dose-biotin-going-on-5-months-patient-thoughts/
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24 thoughts on “High dose biotin for MS month 6”
Do you take it 3x a day as per the study, Jamie? When I started I found it difficult to do so because I was often out and it has since fallen by the wayside x
Yes 3 times a day 100mg per dose. No side effects for me or anyone that I’ve personally known. My hair has grown too, just saying. I know it makes a difference, is it life changing, no. However it is a difference. My friend said they handled the heat better as well, I’m interested to see if that would hold true.
Thank you so much for this update! I will check it out!
I have never, or I don’t remember Biotin, taking that. I have taken Avonex, and had steroids of some kind, early in my MS adventure. Doctor dismissed Gavotin for me because my heart rate is too low. I did Copaxane injections, then and now currently taking Tecfidera.
Biotin is a vitamin. Not to replace any of the main MS therapies, in conjunction with. In a high dosage it was found to improve the disease progression. Slightly improve but improve nonetheless. I think the clinical study link is in my second posting link. I’m currently on a Rituxan sister to the new approved Ocrelizamab. I’m switching to that one this July. I’ve been on many of them.
The research dose that we r following is 100mg 3x’s a day. Its important to spread the dosing out to keep a level throughout the day since u pee it out.
Thank you that’s very true
I am SPMS but no MS drugs ever helped me so I stopped taking them in 2016.
I started taking high does biotin 300mg in September 2017.
I no longer have to use any mobility devices because my walking and energy level have improved and I no longer drag my left foot.
I walk smoother and faster and have no problems with stairs anymore. I can also use my left hand now and definitely have more strength.
You can buy it online from amazon or skipspharmacy.com
Thank you. I’ve been on high dose biotin since October 2017 too. Your results are amazing. I haven’t had results like that at all. I still get worse. I’m also on the clinical trial dosage of alpha lipoic acid and was on a statin. That one I stopped. I Thank high dose biotin definitely helps but I certainly don’t have results like you did.
I did want to mention that it can take 9 months or so for most people.
It’s been over a year and a half. I get it from Ace specialty pharmacy. The orange pill bottle link on my home page. They even make a combo pill now with the alpha lipoic acid.
I also take supplements such as 10000 iu vitamin d3 and cod liver oil. I eat organic.
I follow OMS. Which is basically a plant-based diet with fish and egg whites only. Hi in flaxseed and omega oil. I’m actually considered relapsing remitting as well as secondary progressive. Right now I’m on Ocrevus. I take the vitamin D multivitamin, omegas probiotics still get worse. Everybody’s different
I have had MS for 20 years. I still can be slightly RRMS and definitely SPMS
My walking and energy abilities are off and on but I still do not need mobility devices.
I am also on plant based organic. I had nerve pain since august 2018 and was able to stop it every time by stepping on a ice pack but 2 weeks ago it finally stopped.
Low energy can still be a problem.
I still take it but I am finally running out. I think I may discontinue for a while see what happens.
You can still get the high dose biotin from skipspharmacy.com with free shipping. I plan to keep taking it because my last mri showed no progression and no further damage since I began taking it in 2017.
That’s great. My mri have been clear for years yet I continue to progress
My ms doctor said if the MRI shows no new damage then any new symptoms are from the old damage not progression.
I can’t answer to that. I had a blog post on this before. It is a leaky pool explanation by Stephen Krieger. It helps explain how an mri can look fine as symptoms worsen. It explains basically SPMS
By the way I was diagnosed with MS when I was 19 and I am 67 now. I don’t take any MS medication because none have ever helped me at all.
I only take high dose biotin, supplements and eat vegan.
Do you still take MS medication?
Absolutely. Unfortunately I am disabled today due to changing medications and being off all meds for a few weeks too long. Resulted in another major relapse.
I have always had relapses even with medication. I can say I lasted for a long time thankfully because of them. I am now mostly in a wheelchair. I’ve had MS for 22 years.
God for you that you’ve done so well. It is very inspiring to hear and proves the disease is different for all.
I am spms and a few times I had no energy to walk but after a day or so I was able to walk again. I just hope they will have a cure someday.
I did want to mention that in 2014 I was so bad I was accepted for a stem cell clinical trial at the university of Washington. I had a lot of family praying for me and when my husband drove me to the hospital to begin the trial I all of a sudden began to walk again and My choking stopped. The doctors were so shocked they did a mri and noticed the damage at the base of my neck was gone.
They could only explain it as a miracle.
That is an amazing story