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Author: Youtwohearts

A day in the life with multiple sclerosis.
Put on a happy face

Put on a happy face

Daylights savings was Sunday morning at 2am. I am waiting for this to finally end. I know that there has been legislation within the courts. I also know that each state within each time zone has to approve it to finally do away with it. https://www.google.com/amp/s/amp.usatoday.com/amp/6233980001. This weekend we gained the hour. I was up at my normal time. The clock might have said 7:30 but my body knows it is really 8:30. So do my dogs. Now it will…

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A special birthday wish

A special birthday wish

Happy Birthday to my step dad today. A very special birthday, he turns 70. I’m happy to say I am seeing him for dinner. I have bought a few surprises to make the evening have a party like vibe. We are having dinner at my house so I like it to be a little special. He deserves it to be special. My stepdad has been in my life since I was like 4. I can’t say I have always given…

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Mid week check-in

Mid week check-in

So far it’s been an interesting week. I finally called my doctor about the spasticity. https://multipleexperiences.org/2021/10/29/spasticity/. However if you check out the blog post’s comments you’ll find a really good suggestion from Tom. Even though I take 10mg of Baclofen daily, I personally never felt like it was a big help for spasticity. I take it daily to keep it in my system. When I do have spells of spasticity, I have the prescription to take up to 3-10mg tablets…

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A bank robbery-true story

A bank robbery-true story

I told this story to make aide last week. I may have written a blog about it over the last 5 years. If I did, oh well. It’s a story not many can say they’ve experienced. That makes it worth telling again even if I already wrote the tale. Hey, I’m turning 50 in 22 days, I’m reliving my past days. I was 23 years old. I lived out east on Long Island with my then boyfriend (who would become…

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Spasticity

Spasticity

Good morning. Hopefully it actually is good. It is finally fall weather outside. A lovely crisp 54 degrees. I still have a window open next to me. I am sure my aide thinks I’m insane. I love the chilly air especially when I workout. Eventually I shut them. I’m surprised with this cooler air my spasticity is still really bad in my legs. It can be very difficult to get my leg to bend. It affects my right leg more…

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Introducing Selma Blair, my thoughts

Introducing Selma Blair, my thoughts

I watched Selma Blair’s documentary the other day. It was a good documentary on her journey through her stem cell treatment. I can’t say my heart didn’t feel her fear and sadness during her MS struggles. I had a completely different path with my MS symptoms and onset. It always amazes me that this disease can be so different for each person yet we still relate completely to each other. Selma Blair and I are both the same age and…

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Happy Monday

Happy Monday

Good morning, happy Monday to all. Hopefully everyone had a lovely weekend. I had a great visit with my sister, niece and nephew on Saturday. My dogs enjoyed the visit too. It’s nice to see a 9 and 10 year olds energy around two dogs. The dogs exhausted before they did. Sunday was Formula 1 and it was the only race in the United States. Next season they added a second track in the US, Miami. The big difference in…

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My week finding agencies

My week finding agencies

Well after my blog on Wednesday, I figured I better lighten things up a little. I just don’t know if I have anything light to talk about. It’s not that anything is necessarily bad but it isn’t that great either. I had terrible spasticity this week. My legs have been super stiff. It has made getting up out of my chair and bed difficult. It is very difficult to move when one or both of your legs don’t want to…

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The things we don’t say

The things we don’t say

Sometimes I stare at this blank page and I really know what I want to say. Other times I really don’t have a clue. There are times I know what I want to say but I am to scared to say it. I fear that I might not write it properly and it would be misunderstood. This might be one of those blogs. Let me say right away I am not depressed. I am not suicidal. I am not trying…

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Intake with Suffolk Independent Living Organization

Intake with Suffolk Independent Living Organization

Yesterday started with a bang, and not a good one. Unfortunately, I heard a crash of what only could be a car hitting something. I got up quickly to look, startled. Well you can imagine how that went. I realized quickly that in case of an emergency, don’t ever count on me. In my startled reaction to the sound, I got up and fell. It took me some time to get myself up. Thankfully, there were many people from my…

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