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Author: Youtwohearts

A day in the life with multiple sclerosis.
I need the alone time physically and mentally

I need the alone time physically and mentally

It’s beautiful out a cool 63 degrees and I still have to have my AC on. The only downside to my condo is it’s angle. If the wind is blowing the wrong way this condo gets no air and can become hot with the morning sun. Today is that kind of day. There is no breeze out there. I hate that. I love having all the windows open and a cool breeze blowing and I’ve been robbed of it this…

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Game day at the condo

Game day at the condo

Yesterday I had my first game day with the other retired people in my condo. For some reason it ended up only being 5 of us. We played a card game called Mille Bornes. It was fun you try to travel a 1000 miles but people can give you stop cards or accidents and other things that stop your ability to move until you pick the correct card to get out of the incident. I did not win but I…

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Do you want to change your thoughts?

Do you want to change your thoughts?

I got sleep last night, very much needed. I wish I could stop feeling so tired. I had a really nice day yesterday because my little sister was in from California and spent the afternoon with me. She’s so beautiful inside and out and spending time with her just makes me so happy. I love how we could talk about everything and anything and conversation just flows. Coming off of my upsetting night with my daughter How you perceive your…

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How you perceive your world

How you perceive your world

The phone rang at 2:00 am this morning. My phone announces the caller and when it said it said Mikayla, my daughter, my heart stopped. I couldn’t reach my house phone from my bed but I had my cell near and quickly called her. A girl hysterically crying answered the phone, my daughter was not physically hurt but mentally a mess. She’s been having issues with two different groups of friends at school completely unrelated to each other. One set…

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A week after Rituxan infusion

A week after Rituxan infusion

Good morning happy Monday. I thought I’d give you the rundown of how I feel a week later after my Rituxan infusion. I’m happy to say the allergic reaction is healing and I’ve had no more blisters or open sores. Very bizarre. I’m still on the antibiotic and I have two more days left. I’m glad to say I am out of the chance of infection and I’m not gonna get cellulitis. All good news. I worked out yesterday for…

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Bike MS please support my brother

Bike MS please support my brother

Please donate to a great cause. This is my step brother Howard who bikes for me. He bikes and I can’t. I can barely walk. We need people like him out there raising awareness and funds to fight MS and find a cure. Please help him as he once again bikes for MS. 🧡🧡🧡🧡 Hi There – It’s Howard, and I’m still out here pedaling for your donations. And now I need to crank up the email campaign – put…

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Thankful for Marshmallow and Zoey

Thankful for Marshmallow and Zoey

It is weeks like this I am so happy I have dogs. This was not my greatest week, coming off of my infusion Rituxan infusion complete, having the allergic reaction Allergic reaction to Rituxan and truthfully feeling slightly depressed and they just continued to bring a smile to my face daily. I love their unconditional love they give but I hope they feel the unconditional love I give back. When I was crabby and at a loss of patience for…

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A community in my condo

A community in my condo

There was a sign on the elevator in my building Knowing I was going to be home all week I definitely planned to stop by. I really had no idea what it was about but I’m always up to meeting people in my condo. When I walked in I was the youngest person by about 20 years except for one other person. This get together was to start a little weekly club for all of us home daily. Mostly the…

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Allergic reaction to Rituxan

Allergic reaction to Rituxan

So I went to my doctor yesterday for the open sores on my breast. They are actually blisters that have popped and have pus in them. The fourth spot was still in the blister form. The doctor said it was a reaction to Rituxan. As we were sitting there talking, I realized this was the first time I didn’t have Benadryl through the IV. It is shocking to have Benadryl this way because it needs to be administered very very…

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Blisters on breast

Blisters on breast

So I’m sitting at my doctor’s office because those open sores on my breasts went from 3 to 4 as of this morning. Couldn’t picture the 4th spot Ouch. I didn’t even want to get out of bed today let alone sit at my doctor’s office but I have to check it out. I did learn it starts as a blister that pops and oozes. My aid pointed that out with the gauze pad attached to them. Just another thing…

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