This is so follow up or maybe part 2 of yesterday’s post. I’ve listen to many people and read many blogs that discuss the need for assistance devices and how they “aren’t ready”. A huge part of the progression of multiple sclerosis chips away at your personal independence. It’s a stage of the disease that affects the ego and the perception of normal or healthy. It’s when we start to look different from everyone else. When we can’t hide the…
As multiple sclerosis progresses, so does your assistive needs. The first thing I got was the handicap parking permit. I’ve had this for many, many years. I got this early in my disease when I use to work in NYC and had to take a train. The parking at the station was insane and even back then walking that long distance in a rush to catch a train was very difficult. I was never able to run or skip again…
Anyone that knows me knows I don’t cook. I just don’t like it but I know my way around the kitchen. As my multiple sclerosis worsened cooking became even more difficult. I have limited time I can stand on my feet, over a stove or cook top. I also have limited time I can cut and chop before my hands fatigue. Many times I will prepare a dish only to not be able to eat because my hands literally cannot…
I spent a lot of time hitting the floor yesterday and not by choice. Since becoming vegan I’ve had episodes of an unsettled belly. Ok I can understand that. However when you try to make a B-line to the ladies room with multiple sclerosis, doesn’t usually workout too well. The term run isn’t in my vocabulary of things I can do anymore and walking fast can cause other issues. HELP I’VE FALLEN AND I CAN’T GET UP!!!! I should be…
I was 27 years old when I was diagnosed with multiple sclerosis. At that time MS had 2 therapy drugs available Avonex and Betaseron. The information on MS wasn’t what it is today because the Internet wasn’t what it is today. I can’t remember how but I joined a support group for multiple sclerosis. I’d say 3/4 of the group were in wheelchairs. At the age of 27, who had recovered 95% from her first attack, this was NOT what…
My life coach says I’m in a growth stage and not wanting to date is perfectly ok. I must admit, originally I thought I’d take a few weeks, a month off, then Boomer, my beloved English Bulldog died. In that grieving time, besides bonding and training a new puppy, I also got to a very good place in A Course in Miracles. I just felt good being alone. It wasn’t a matter of the multiple sclerosis, although that will always…
I have yet to master eating out or going to someone else’s home since becoming vegan. When I say master I really should say try. I’ve dined out maybe 3 times in the last 2 months and my meal consisted of a salad and a vegetable side. I normally try to eat something first so I am not that hungry when I go. When I’ve gone to a friends house I don’t eat there at all. Tonight is Super Bowl…
Enjoying another happy Saturday with my family. I’ve been up very early this morning with Zoey. At 2am I had to clean up her cage she had an “accident”. She hasn’t had an accident during the night in weeks. Ok no big deal all cleaned up and everyone was tucked back in until 5am. I wasn’t surprised since we are up around that time anyway. Then I did something new, I put her in my bed with Marshmellow and I….
Anyone with a chronic disease can tell you that those 4 little words, “you don’t look sick”, is enough to drive them crazy on the spot. I’ve written many blogs about symptoms of multiple sclerosis you’d never see. https://multipleexperiences.org/2017/01/23/multiple-sclerosis-serious-symptoms-respitory-issues/ https://multipleexperiences.org/2016/12/04/multiple-sclerosis-silent-symptoms/ https://multipleexperiences.org/2016/11/28/lets-talk-about-sex-and-multiple-sclerosis/ https://multipleexperiences.org/2016/08/05/im-not-tired-im-fatigued/ Multiple Sclerosis, especially in the beginning, can look silent at first. For the first 8-10 years I had barely a limp when I walked. I would fatigue if I walked too much and by too much I mean…
