I received a message on my Facebook from a guy saying how he reads my blog everyday, even though I completely trashed him. He said how he thinks I’m brave and strong fighting my multiple sclerosis, but of course that isn’t what stuck in my mind at all. I couldn’t imagine who I was ever “trashed” to in my blog. I never use names although most of the time the person I am writing about knows it. Then it dawned…
I had the best physical therapy session ever!!! Just one of those days where my legs were super strong and didn’t fatigue to the point I couldn’t walk, like they normally do. I even had enough energy to get to the food store. I needed a few ingredients make my favorite soup. Thought I’d do something different today and share a plant-based vegan soup recipe. I was just so happy how well today went I also had to share my…
During my treatment yesterday, there was a man sitting next to me that I started talking to. The conversation started after he had to take a phone call and felt bad that he thought he was disrupting his neighbor. He apologize for the call and explained his brother-in-law was going in for triple bypass surgery today. He was sitting next to me getting Chemotherapy. I politely explain no need for apologies, I totally understood . From there we…
Most doctor’s do two rounds two weeks apart and then you repeat every 6 months. It will be the same senario as when I posted the first time https://multipleexperiences.org/2017/01/16/rituxan-infusion-day/. I feel bad for Zoey, the 5 month old puppy, today because no one is around and she has to be in her crate for 6+ hours. I feel bad for me because Zoey will have a lot of energy when I get home. Maybe it’s Marshmellow, my 8 year old frenchie,…
I woke up so angry and sad. My hometown bar is closing, last night was their final night. I spent most Friday and Saturday nights from the age of 35-39 there. I wasn’t going to go, actually the one person I thought would ask me didn’t even ask me (hurt feeling #1). Then I was asked by someone unexpected. At first I said yes but then common sense kicked in. First the group of girls I used to go with,…
It’s 7:00am and I hear the quiet whimpers from Zoey who is awake and ready to start the day. Ugh one of the downsides to a puppy, up early. She is doing so great considering the second day with her I was in hysterics saying “I can’t do this I need to give her back.” Well we are still battling with Giardia but I’m pretty sure my Marshy is better. But this puppy, this puppy is super fast. She consumed…
I was driving and my iPod was shuffled playing random songs from my entire music collection. My favorite things when driving were music and smoking. I could drive for hours smoking with the music cranking, loud. I quit smoking years ago for the final time. I didn’t wait for the last cigarette of the pack, I didn’t even throw out what was left of the pack. I woke up one day and said enough. I can’t smoke anymore. It messed…
Every neurological patients has gone through the tests. Touching your finger to your nose and back, walking heel to toe, toe to heal, tuning fork and pin prick. Then there is the one you stand up put your arms out in front of you and close your eye…do you topple over? I do. I do when I’m home getting dressed and I momentarily loose eye sight because the shirt got stuck and down I go. Why? It’s the loss of…
I was asked today by my physical therapist how are you? I am sure anyone with a chronic disease thinks this is a loaded question. Actually a good friend of mine called me the other day and said, “I’ve learned so much about you and what you deal with on a daily basis from reading your blog. I never knew. Some of it makes me laugh, some makes me feel so bad that I can’t help you, but I never…
Ive been watching madmen lately and what has struck me the most is how things have changed. Even since I was a kid against my daughters age it’s amazing the difference. I remember I had a TV with 13 channels to choose from. After Saturday morning cartoons, there wasn’t much to watch if you were stuck home for the day. I didn’t even have a remote for the TV. I remember coming home from camp and my mom and stepdad…
