Christmas is in two days. Another year has come and gone. I spent last New Years Eve in the hospital. I never could have imagined that 2022 would be such a difficult year for me. It was 22 my number. I thought great things were going to happen. https://multipleexperiences.org/2021/12/27/my-angel-number-22-and-the-new-year/ I wrote that post 3 days before I got sick. I was so excited that it was 2022. My head was stuck on the fact that 22 was my angel number…
I wanted to share the link to my Facebook event for Bionic Gym. https://www.facebook.com/100050572295847/videos/681628466987768 I just love Bionic Gym. I’ve been talking about it since day one of using the gym. I was planning on showing you my Apple Watch stats for two of my workouts days I talk about in the Facebook video. First the workout where I just let it run until the battery dies. This is the one I do nothing to increase my heart rate. The…
We decided to do a round of steroids. I discussed this with both my neurologists. Throughout my years with MS, I would average steroid infusion treatments two times every year. That is why I was on so many disease modifying therapy drugs for multiple sclerosis, I always had relapses despite taking these medications. I hated steroid infusion. I hated the side effects. I hated the withdrawal. I refused to taper after the first few years dealing with steroids. Going from…
I’m so excited to be able to share this with everyone. I am doing a live session about Bionic Gym. I am doing this with the founder and creator of Bionic Gym, Dr. Louis Crowe. I have been very lucky to have had the opportunity to personally talk to Dr Crowe on a few occasions. He responded to me after I made a video for Bionic Gym customer support. I have loved Bionic Gym from the day I received it,…
I have to say this cold has kicked the shit out of me. I know taking Rituxan lowers my immune system but I honestly very rarely get sick. Even my issues in 2022 I was on Kesimpta, not Rituxan. The last cold I had was back in 2019 when I went on my last vacation. I went to Mexico with my family. I had the worst cold. I was miserable for the first 4 days of the week’s vacation. I…
I went out for Thanksgiving. I went home, my childhood home. I haven’t been there again in years. We certainly didn’t know if I could last in a wheelchair for the duration of dinner. To complicate matters I needed to use my hooveround, not my main wheelchair, because the ramps are fitted according to that wheelchair. It didn’t matter I did really well. I sat through all of dinner. I sat at the table with my family. I was very…
It’s my birthday tomorrow. 51!!! I’m middle age. I think my body has been middle age since I was 43. That was when multiple sclerosis hit me with the last relapse that started my path of true disability. It’s been 8 years since that last relapse. It was when I was switching from Tysabri to Rituxan. I made the mistake of stopping Tysabri because I actually had the thought of switching to an experimental drug. I needed to be off…
My gastroenterologist called me the other day with one of my biopsy results. I didn’t expect the diagnosis but I also wasn’t shocked. Most people think heartburn with acid reflux. I really don’t have that issue, or at least I don’t think I do. I do have the feeling of smoking a carton of cigarettes upon waking up some mornings. Is that heartburn for me? I thought that was the MS hug. Sometimes my symptoms don’t make sense to doctors….
Hello my fellow blog readers. How are you doing? I was absent last week. I had so much going on getting ready for my colonoscopy/endoscopy on Thursday. The prep for the colonoscopy was horrible, HORRIBLE!!!! I even started 4 hours earlier than the instructions indicated. My aide changed me every hour from 12pm-6am. I was physically and mentally exhausted. Thankfully I had an early appointment. Unfortunately, I knew I wasn’t cleaned out. A very easy indicator was that the stool…
I am half way through my Rituxan infusion. Chilling out watching Ink Master. I was smart this morning. I kept my arms covered despite being slightly warm. I know, all too well, that my cold arms do not help when trying to start an IV. I overheat so easily so there is usually a fan blowing right next to me. I might not feel cold but my arms and hands are always cold to touch. I kept a sweatshirt on…
