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Tag: difficulties with ms

Blogging everyday

Blogging everyday

I don’t know why I blog every day. I don’t know where I put it in my head that each day I was going to put in an entry. I think at some point it became so cathartic for me that I wanted to blog every day because I was working through so much shit. Now I find that sometimes I really don’t have much to add. I sometimes wonder if I’m putting almost pressure on myself to submit a…

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Patting myself on the back

Patting myself on the back

Go me!!!! My aid couldn’t come today, so I couldn’t go to the pool. I guess I could’ve asked my daughter to come with me, she would have, but I didn’t want to bother her. Instead I got my Beachbody programs on my TV and I did my workout. I haven’t done my Beachbody workouts probably since July, thanks to the shoulder tendinitis. I always refused to let MS tell me what I couldn’t do and amazingly it was my…

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4 Core Stability Exercises for MS

4 Core Stability Exercises for MS

Happy Friday. I had my physical therapy evaluation yesterday. This year it’s all about the core. Or I should say the lack of core. I have four exercises I need to do every day. Very simple exercises, for normal people. However, I’m not normal people. These four exercises are very difficult for me. I was exhausted after doing them. I’ve explained this so many times in this blog, fatigue is not just tired. It’s exhaustion where are your muscles are…

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Reviewing DoTerra vitality pack

Reviewing DoTerra vitality pack

Good morning and happy Wednesday, middle of the week, hump day. I didn’t have my view yesterday. It was so much fog out here I couldn’t even see the water. Today I can see the water so I am automatically happy. Sitting down with both of my dogs on my lap and feeling good. I started taking the DoTerra vitality vitamins and supplements over a week ago. My review so far is it’s a lot of pills. However, for me,…

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I’m not drunk I have MS

I’m not drunk I have MS

I have this shirt that says, I’m not drunk I have MS. The shirt always makes me laugh because you really do come across sometimes like you’re completely drunk. I remember when I used to work the reason I disclosed that I had MS was for that very reason. I didn’t want to have to be drug tested at work every day. I just do the goofiest, silliest things that must look humorous to an on looker. I’ve had the…

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How can you find love with MS

How can you find love with MS

You know when you can wake up and know it’s gonna be a bad day? I’ve been on the floor four times already today and it wasn’t from falling. It was for my hands knocking things over and I had to find them to pick him up. I woke up upset because at 4 o’clock in the morning I had an accident. This is the third time that it’s happened while I was asleep.WTF???? Is this going to be something…

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Neurologist visit day

Neurologist visit day

In three weeks is my official diagnosis anniversary of multiple sclerosis. Today I am going to see the doctor that made the diagnosis 20 years ago. I’ve said it before in many posts, I have two neurologists for my MS. One is a specialist in New York City and one is my long time original neurologist that I’m seeing today. People might think that’s ridiculous, why do I need two? The reason I ended up with two is because none…

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Things that go bump in the night

Things that go bump in the night

I had this post written title one other time. I wrote it about being convinced I heard Boomer, my English Bulldog, after he passed away. I realize now that the things that go bump in the night is usually me. The biggest obstacle I’ve had, since I moved in the condo, is I sleep on the other side of the bed then I use to for the last 25 years. I always slept on the left side which, for all…

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Exercise in a pool for MS

Exercise in a pool for MS

I went in the pool. Finally!!! I was the only one in there. I can’t swim anymore. My legs can’t kick. My legs actually can’t even get high enough in the water and I usually end up going under. The truth is I probably could do more but I was trying not to get my hair wet. Let’s be real, with multiple sclerosis there’s only so much energy I have. To go in the pool for the first time in…

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Setting of the med-alert again

Setting of the med-alert again

Back in June when I got into the program for the nursing aid, I also received a new med alert. So I’ve had this new one for quite some time and I like this one because the button it’s harder to push. Therefore I have had much fewer false alarms. By fewer, I mean zero. So I finally like this one. When I moved there weren’t many spots I was able to hook it up and so I had to…

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