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Tag: good ms days

Exercising is not optional

Exercising is not optional

I truly want to write happy, uplifting blogs but I haven’t been able to do that lately. For every good day I’ve been having a few rough days following. It seems like I’ve been having more rough days than good days. Each time I think I’m through the worst of it, like my infusion, something seems to happen. If it is a tough night sleeping or a great night sleeping, I’m waking up tired. Doesn’t seem to matter. Today I…

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I’m a good tired

I’m a good tired

I’m tired. I start a lot of blogs like that, don’t I? I have put myself through an entire month of working out every single day. Was it worth it? Hell yeah!!! I love challenging myself through workouts. I always did.  Of course everything is completely modified because of my MS, but it’s still incredibly hard for me. On top of that though, I was busy this week. I had my friend from the building up visiting. I had…

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Happy Birthday to me

Happy Birthday to me

https://youtu.be/emapZzstxzU Another year has gone by and another number added to my years alive. I certainly am not complaining. I am actually grateful. Things were really good this year. My life was completely changed by many people, friends, family and others that barely know me contributing to my fundraiser for my van. This was at the perfect time when walking with my walker was becoming too difficult. This van gave me freedom. I was able to conserve energy that I…

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Grateful for a good day

Grateful for a good day

Had a great morning, slept late. That is always a good thing. I’ve been tired. I’m always tired, that isn’t anything new. I just needed to sleep. I went into bed at 9 was asleep by 9:30 and slept until after 9AM. That is a good night. I went swimming right after I got up this morning. That is my Fitbit readout. Not a bad workout. Not 100% sure how the lengths are measured but I’ll take a 68 with…

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Go me…a good MS day!!!!

Go me…a good MS day!!!!

I went in my pool yesterday for the first time in almost 4 months. It’s the first time I even swam since the middle of January when I was away. My elevator was broken for so long and it is my elevator that is attached to the building with the pool. For me in my wheelchair, I have to go outside to get to the pool when my elevator is broken because otherwise there are steps. Other people wouldn’t have…

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Happy 49th plus shipping and handling to my sister

Happy 49th plus shipping and handling to my sister

I finally woke up feeling better today. I feel like me. I got up and exercised first thing this morning and it felt really good to sweat. The headache is gone. It has been a full week but I think I’m through the side effects. It is my beautiful sister’s birthday today. She is 50 which I can’t believe because she looks younger than me. She is a kids music and movement teacher. https://m.facebook.com/barikoralfamilyrockband/She has her own YouTube channel with…

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I’m on vacation my MS is not

I’m on vacation my MS is not

It’s been less than 48 hours that I’ve been on vacation and my multiple sclerosis has not been easy. Half of my clothing I’ve worn so far has been washed due to bladder issues. Not a fun way to start. Really MS, you couldn’t keep that shit together for a few days? I’ve had countless people helping life me feet up small steps or onto golf carts from my family to hotel staff because my legs are far from cooperating….

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A better MS day

A better MS day

Well some of the fatigue in my arms has lifted, thankfully. I slept for 11 hours last night. Considering most days I sleep about 8-9 hours, I’m not usually lacking in the sleep department. I guess I still needed it. I probably could have slept longer but the phone rang. I had the worst spasm in my leg yesterday. It took a few minutes for the muscles to relax so I could get my leg to lower back down. It…

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“Fear” of walking with canes from the rollator

“Fear” of walking with canes from the rollator

My MS therapist was here yesterday. She was doing some balance stuff with me in the pool observing my core. She said you should be walking now without the rollator. Not without help mind you, but with canes. My back is so straight I should be able to be upright, not leaning over with the rollator. So that is the new game plan, to start teaching my legs to walk again with two canes for balance. We did a practice…

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Good MS days are few

Good MS days are few

It’s always a good day followed by bad days. Doesn’t it always seem to go that way? I woke up this morning feeling like I smoked six packs of cigarettes. I haven’t smoked in almost 4 years maybe more. I hate that feeling. It’s something like the MS hug but not quite. I have a headache mild but there nonetheless. I also had a little numbness going down my left side out of nowhere. My stamina in my workout was…

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