https://youtu.be/emapZzstxzU Another year has gone by and another number added to my years alive. I certainly am not complaining. I am actually grateful. Things were really good this year. My life was completely changed by many people, friends, family and others that barely know me contributing to my fundraiser for my van. This was at the perfect time when walking with my walker was becoming too difficult. This van gave me freedom. I was able to conserve energy that I…
Bubba is back. Bubba is the name I gave to my handicap van. He’s a big boy so Bubba seemed fitting. Turned out it only needed a battery. Good to know that even as the battery dies the ramp still works. Well $200 later he is fixed, sort of. The back sensors that were installed when I bought the car aren’t working. I asked the place that was fixing the car to fix those too but they can only be…
I got in my car yesterday turned the key and nothing happened. The radio worked, my lift comes out, the lights on the dashboard come on but the car doesn’t start. Thinking the battery we gave it a jump and tried and tried and finally the car turned over. Phew. I really didn’t want to miss mahjong. I even turned the car off and on briefly to make sure we were good to go and we were. Off I went….
I can’t imagine my life without this van. It was time to be in a wheelchair and I didn’t have the means to accomplish this. It took a long time and help from so many people. I still can’t thank them enough. I have a life again and I can go places without everyone worrying; how will I get in, will I be able to get there, will it be too much etc. This van wasn’t only great for me,…
I had the best nights sleep I had in a long time. I woke up once at 1am to use the bathroom and then slept right on through until 7:22 when the bathroom called again. That is a long stretch of time for me. I needed that!!! I could still sleep more truthfully but it was time to start my day. Plus my cell phone went off and I answered it. I normally go to the gym today but decided…
I want to thank my neighbors in my condo. I had a flat on my back rear passenger side tire. Someone noticed it and called the security booth for them to contact me. Since it was already dark I didn’t go downstairs to look at it but I asked my daughter to check it out when she came home. She confirmed it was really flat. Great. Luckily I bought on Amazon a cordless air pump for my wheelchair tires months…
I hope everyone had a lovely weekend. I wasn’t able to share Mother’s Day with my daughter but I was able to share the day with my mom and stepdad. The food was fair but the company was great. We were seated at this huge table for three people and we all moved our chairs to one side to be near each other, that love. It was the first time we took my van together. My stepdad drove, my mom…
I had another accident yesterday as I was sleeping. I was sleeping, how horrible is that? I was in the shower cleaning myself at 12pm. WTF????? This has been a brutal MS week for me. Between being stuck on the floor A honest look at an MS bad day and accidents this has been an extremely dis heartening week. Yesterday I scratched up my car. I’m still in my reserved handicap spot but it isn’t the van spot. I have…
Another good day with good news for me. My insurance is covering for a new Hooveround MPV5. I bought my original one used a few years ago and I loved it but it always had issues. First of all it doesn’t drive straight. The chair’s steering was always messed up and to get it to go straight meant I had to steer slightly to the right. Sometimes if I went to fast I zigzagged and ran over peoples feet. The…
Today my van is getting delivered back to me. It seems that the circuit breakers under the floor were water logged. I can’t explain how but the switches needed to be replaced. They kept the car for an extra day testing everything out and hopefully this won’t be a problem again. I am doing my Rituxan infusion later this evening but I am doing at home. That makes a five plus hour infusion so much better. I get to be…
