I’m going out…my wheelchair evaluation
I’m going out into the zombie apocalypse tomorrow. Wish me luck. It will be my first time out in almost two weeks. I’ve been very good at hiding myself away to keep safe but now I must make an appearance. I finally got an appointment for a wheelchair evaluation at my physical therapy office. I’ve waited four months to be seen. I couldn’t decide to not go. They assured me that the staff is in masks and the gym is…
A week after Rituxan
I went through my blog posts because I couldn’t remember how many times I’ve done Rituxan. I made the switch from Ocrevus back to Rituxan for the March 2019 infusion. This is my 3rd time. I was on Rituxan at an earlier time but was forced to change when Ocrevus came out. My insurance company, at the time, would not authorize Rituxan because it was not approved for multiple sclerosis. I than changed insurance companies once again and asked to…
Rituxan infusion successful
I’m happy to report that I have no blisters today. I had three little red marks last night that looked almost like welts. This morning I only saw one. I can’t even begin to tell you the relief that was for me. I will be able to continue Rituxan until something better comes along. That isn’t the greatest statement but it is better than the alternative of putting me on a drug that might not work for me. The infusion…
Rituxan infusion on Sunday
I’m a bundle of nerves which is so unlike me. Between my daughter’s school having a positive case of the virus and choosing to let her stay in Albany My daughter school has a positive case of the coronavirus I feel worried. I’m the mom, I’m supposed to protect my kid but instead I’m keeping her away from me, protecting myself. She’d rather be there, thankfully, but I know the decision is also for my own benefit. My daughter will…
Not liking physical therapy
So after a second day of consuming a regiment of oregano oil and using Doterra Breathe, I got into bed sneezed once and never sneezed again. Achoo-ing through the night. Woke up fine. So strange!!!! I’m doing much better with the Provigil. I’m so happy to report. I am no longer waking up exhausted as if I never slept. That has been such a huge difference that I’ve been able to get back to my life. I have still been…
Another nursing evaluation
I had a nurse evaluation yesterday for the agency. Nothing shocking, mostly paperwork stuff. My medications were listed for the dosage and times I take them. I’m taking 9 different medications at 48 years old. That’s a lot of pills. If you include the vitamins it’s 17. A crazy number yet they all serve a purpose and that’s what the evaluator and I were discussing. Most I take at night because they cause drowsiness so I got the warning about…
MS and body temperature
Everything worked out with the agency. They found an aid to cover the days that my normal aid is out. She is very nice and the dogs are fine. Thankfully it’s all good. I just didn’t sleep well last night. I woke up at 3am and really never fell back asleep. I was sweating all night too. Of course I was wearing a white T-shirt that my hair color has now dyed red spots on. I should have turned my…
Light at the end of the tunnel
Day two of waking up and not feeling tired. I can’t even put into words how great that is. I am starting to feel more like myself. I still was in bed by 8 yesterday and sleeping before 9. I also had no strength in my legs and had to transfer directly from my wheelchair to my bed. Yet all that is ok because I woke up peppy and smiling. I woke up in good spirits with energy and it…
I showered, I’m exhausted
What can I say. I’ve been like a lump on a couch. I showered today, go me!! I’m exhausted 😴. I was exhausted when I woke up. My eyes feel swollen after I slept for almost 12 hours. How much more can one person say about fatigue? I’ve done nothing so I have nothing to blog about. I can tell you I’m tired of people saying me too. Anyone with multiple sclerosis or chronic illness knows there is a huge…
