I last took a Kesimpta shot on January 19. It is now the beginning of March. I had this dilemma of being behind my shot date in January. After Covid and a UTI that put me in the hospital the first time, I needed to be well before I took my shot. That ended up being about 6 weeks after the last shot Kesimpta dosage instruction is every 4 weeks. I’ve never not taken a disease modifying therapy from the…
In the hospital that is. I was home a total of 5 days before I ended up once again in these too familiar surroundings. It started the day after I got home. I actually slid off my bed onto my stool. From there I couldn’t stand up. I had to have EMS come and get me off floor. A great beginning to being home from the hospital. That day I was spent from doing anything else. I never got out…
After 20 days in the hospital I’m happy to say I’m finally going home. I’ve had no fever for the last 5 days. My last chest X-ray showed improvement. I can breathe again. I feel like a new person. I am still getting terrible sweating episodes everyday but no one is worried. They feel it is still my body’s way of releasing toxins and infections, even without the fever. I have to say there were moments in these last 20…
Yes, I’m still in the hospital with a pneumonia. Today marks day 12. I can definitely have another blog about what is happening especially since being immune suppressed isn’t helping the situation. Most people look at February 14 as the day of love but it will never be that for me. No, for me it will always be the weekend back in 1998 when I was moving into my new house. Valentine’s weekend and my left foot started to go…
Well I actually thought for a moment I was getting better at home. Then I started having to retreat to my bed earlier and earlier from my big living room excursion. Then getting into my wheelchair started getting me breathless. Fever spiked every day. We all knew something was wrong just didn’t know the best course of action. I had set up a video call with my primary doctor which seemed to prove pointless but actually ended up starting the…
I am still here, barely. I got home from the rehab last Wednesday. It has been rough!! I fell 4 times within the first 12 hours. My strength was significantly worse than I realized. My legs couldn’t hold me up. I realized they didn’t have the strength to push from a seated position to a stand. I was bed bound. This dark cloud came over my world. I refused to talk to anyone. I cried. I am always fighting multiple…
Hello everyone, Happy New Year. I know it seems like I disappeared but unfortunately I had legitimate reasons. I ended up in the hospital last Thursday with Covid and a UTI. It wasn’t really the Covid that put me in the hospital it was the combination of the two infections. I was so weak I was having difficulty sending a text message. I spent New Year’s Eve sleeping in a hospital bed. So much for 2022 being my year. I…
Inconclusive. My bladder test was inconclusive. They said that the sample contained bacteria in their that couldn’t have come from the urine alone. I was thrilled I got urine in the cup. That was a challenge in itself for someone with multiple sclerosis and bladder issues. I even was able to use the little handy wipe they give you before you give the sample. I was so proud of myself that day. So much for that gold star. Thank goodness…
I might have put it all together. A few months ago I treated myself for a possible bladder infection/UTI. Maybe not the smartest thing, but I did. I suspected I had a bladder infection and I had some antibiotics. They weren’t the normal antibiotics usually prescribed for any type of infection in that area, but according to google, it would work. I took them for a total of 5 days. The normal prescription, for the antibiotic I had , is…
I was thinking the other day, what if there was a magic pill to cure multiple sclerosis? What if I can take something that not only stops future disability but cures current disability? What if tomorrow I could actually walk again? I have spent half my life with MS. It is part of my identity, even though I pretend it isn’t. Who am I without my disease? I have this recurring dream that I’m working but still collecting disability. In…
