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Tag: living with MS

It’s TODAY

It’s TODAY

oh my God it’s today, we close on the condo. We all meet at 10 o’clock this morning and by 11 o’clock, I will have the keys to my new place. It’s so surreal. I was there yesterday to do the walk-through and it was basically clean but there was still some stuff laying around. Today when I come in will be my blank slate. Today I’ll see the condo for the first time with absolutely nothing there. I’m so…

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An attempted bombing in NYC

An attempted bombing in NYC

BREAKING: Attempted bombing in NYC subway at Port Authority bus terminal on 42 & 8. The suspected perp is the only injury. My daughter was much calmer in her text to me this morning, There was a bombing on 42 street station so we couldn’t go through it. I know that there are over 8 million people living in NYC but I worry about mainly a handful of people. My daughter being the one I worry about the most. I…

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Snowfall and Multiple Sclerosis

Snowfall and Multiple Sclerosis

The first snow is supposed to fall today in New York. I always loved the snow. I never liked driving in it but I loved to look at it. I love when it’s quiet and everything is white. You look outside the street the world just seems transformed and peaceful. Everything appears so different. However after that snow, what a mess. There are huge piles of snow because the plows. There are always parking spots that are taken because of…

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Oops…that kind of day

Oops…that kind of day

You ever have those kind of days where everything falls, things break, or everything just seems to not go right? That’s my day went yesterday. It wasn’t things that I did necessarily. It wasn’t my MS and my hands couldn’t hold something, something that happens often. It was different things around me. It was going to the doctor and having to sit there after they change my appointment from 2:30 to 1:30 and I ended up not being seen until…

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And how are you?

And how are you?

One of the greatest things about my blog, is the feedback I’ve gotten from people that have known me for years. It’s the first time they really seen into my life on a daily basis. The truth is as soon as the how are you feeling question is asked, I immediately, say ok, how are you? I mean really what was I going to say to them, I had an accident today I peed my pants or or maybe I…

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I got a new scooter/wheelchair

I got a new scooter/wheelchair

I always call it a scooter, but technically I guess it’s a wheelchair. I really wanted the hoverRounds MPV5. When I called it was over $4000 and of course my insurance wouldn’t cover it. My thinking was I was going to wait until I became Medicare eligible and get it then. Medicare pays for it. The problem with that outlook is first I’m not gonna be eligible for Medicare until, two years after the start of my disability which is…

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It’s another Monday

It’s another Monday

These days come fast, don’t they? I have to say, it’s been very busy for me. Good busy buying stuff for my new condo, but busy. I’m exhausted and it’s Monday I didn’t even do anything. I was out both days this weekend shopping. I had buy new locks the door. May not sound like such a big deal, but I have multiple sclerosis and it’s getting worse. I fumble a lot with keys and sometimes the dexterity in my…

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Ten days left until close

Ten days left until close

The first piece of me was added to the condo yesterday. My light fixture over my dining room table. This is a terrible picture because it looks gold in this yellowish light but it’s silver. It actually looks like this. In the condo she has these lights with lamp shades makes everything look yellow. Today my step dad and I are going to Home Depot to pick out new door locks and sconces. On a side note yesterday was the…

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The final stretch

The final stretch

December is here already. These years are feeling like they are speeding up as I get older. This is a big month for me. My step mom and Dad both turn 75 this month and they also celebrate a 25 year anniversary. Happy birthday and anniversary to them. Big milestone marks and celebrations. Unfortunately, I won’t see them until February when I go to Florida but I can visit and celebrate over the phone. My dad is getting a pacemaker…

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Multiple sclerosis changed my life many times

Multiple sclerosis changed my life many times

This blog was inspired by another MS blogger, who like me, has had this disease along time. Her positive spirit is always an inspiration. https://trippingthroughtreacle.com/2017/11/28/accept-adapt-succeed/ It wasn’t one time, it’s been many times. The first was the day I got my diagnosis. I didn’t understand what MS was. There wasn’t an internet yet I could search. I had to look it up in an old set of encyclopedias that were in my home. It had maybe two paragraphs in the…

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