#just wanted to add this note because this was such a dismal post. A few hours after I wrote this post I realize something very important, with secondary progressive MS you are not functional one day to Stuck on the floor another. I don’t have relapses anymore. I now realize I was sick with this abscess infection and it played havoc with my MS. So yes, this is a possible future for me with MS, but it won’t happen overnight….
I was in a bad mood yesterday. I don’t normally have bad moods that last anymore but yesterday I did. I just didn’t snap out of it and truthfully I am not sure I wanted to. I was upset for my daughter Love to my daughter which certainly set the stage for my day but then just little things got to me. Dumb things. The phone constantly ringing drove me nuts. An email I was answering disappeared. My favorite shirt…
It didn’t flood in the streets yesterday so no daytime pictures to show you. Although that bulldozer is still there I’m excited today because we are playing mahjong here in my building. I’m excited to play but exhausted so I’m grateful to be playing here. I feed the dogs and showered that’s it, I’m wiped out. This is why I straightened my hair because I’d never have the energy anymore to blow dry and style. I’m glad I’m still able…
I got rid of the migraine that I had for three days straight. Nothing worked until I used a little medicinal marijuana for the first time in years. That at least took the edge off because it helped release the spasticity through my back. I woke up this morning ready to take on the day pain free. I wanted to swim this morning first thing. I was excited to once again try to hit my mile goal swimming laps. I…
I made it!!! Another summer survived. I’m ready for my jeans and sweatshirts. Im ready to turn off the AC. I’m ready to open my balcony windows and let the crisp air in through the condo. I’m ready to snuggle under warm blankets. I did ok this summer mainly because of my van and wheelchair. I couldn’t have done most things without the use of my wheelchair. Thankfully my van provides me with that ability to be mobile and safe….
My five minutes of fame. ?. My little write up about how I’ve benefited from the MS Foundation https://msfocus.org/ came out this month. My writing was split on two pages so it was difficult to picture for you to read but I did my best. Pretty neat. First time my words and certainly my picture has ever been published. Btw I’m Jamie from Freeport just in case you missed that part ?
I’ve been really good lately. Especially since I switched to my wheelchair outside my condo. I went from falling almost daily to a couple of times in a month. That’s a big difference. It goes to show you how much the walking was really causing me to just exhausted myself. Yes I needed the van to make my life easier but I also needed to admit to myself the time has come and I really couldn’t walk anymore. It was…
It took me a long time to recover yesterday after swimming Back in the pool. I knew it would but my recovery time keeps getting longer and longer. I’m not looking forward to the day I don’t recover because I’m not planning on ever stopping exercising. I might have had to revise it drastically but I still do something to help myself move at least 30 minutes 5 days a week. Unfortunately the rest of the time I’m quite sedentary….
I saw this and had to share it with my readers. The is the MS Foundation https://msfocus.org/ which is located in Florida. I’ve used them for many things from information to grants. They are a wonderful resource to people with MS. Transportation Assistance Grant https://msfocus.org/Get-Help/MSF-Programs-Grants/Transportation-Assistance-Grant The Transportation Assistance Grant program was established to help members of the MS community remain as independent as possible, and ensure all people with MS have the transportation necessary to get the best medical care….
Right down the road from where I live now is a Boston Market. This restaurant has significant markers to the history of my multiple sclerosis. It was this restaurant that I was promoted to general manager. It was here when I was on the phone with my mother when she asked me how my eyes were. The question was about my optic neuritis which wasn’t diagnosed at that time. That was later figured out after my diagnosis. I remember when…
