So far I feel fine since my Rituxan infusion, although I am all too aware it won’t stay this way. After being on Rituxan or Ocrevus for the last 4 years you kind of get a feel for these things. I do have to say I don’t feel bloated from the infusion. I think it is because I drank so much water. For some reason my mouth became Sahara desert dry during and the night after I received the medicine….
It took 4 needle sticks to get my vein for the IV yesterday. Not only stressful but painful. I may have dulled sensation on my skin but it certainly still feels needles. This was my nurses 5 infusion with me. Each time it is getting harder and harder to start the IV. Yesterday this process took us almost an hour. We had to break out the heating pad to try to warm my arm up. It eventually helped, but it…
It’s the day. It’s finally here. I’ve been doing these infusions for so many years now. I was on Tysabri for a few years prior. You”d think I’d be totally accustomed to these things by now, but I’m not. I get really anxious before the infusion starts. Partially because finding my veins for an infusion is not easy. If I’m doing blood work it’s very rarely a problem. However, whenever they have to find a place to keep an IV…
I’ve written many blogs showing things that I’ve accomplished over the years with multiple sclerosis. That is partially what this blog is about. There have been some in reference to my daughter https://multipleexperiences.org/2017/05/27/my-daughters-triumph-being-deaf-with-cochlear-implants/. Many about my workouts https://multipleexperiences.org/2021/01/27/im-kicking-ass/Lots about attitude and positivity https://multipleexperiences.org/wp-admin/post.php?post=2350&action=edit. However yesterday I think I had one of my biggest achievements so far, I fixed the dead bolt lock on my door. This might sound funny to you but to me it was a really big deal….
I made it through the day yesterday but barely. I was absolutely shot by the time I got home. I got everything I wanted accomplished. I officially have handicap plates on my van. They almost didn’t let me get them. I had a copy of the original DMV doctor form. I didn’t think and grabbed the copy. According to the rules they don’t accept copies. The supervisor finally came over and did a visual confirmation and accepted the form. I…
The MS gym rolled out a brand new site and program yesterday. Based on the new program and functional maps, I was supposed to go back to the beginning again. I just completed the standing strong program. Even though I completed the program, I would have repeated the phases because I was far from mastering the exercises. I have been with the gym for about a year now and I have done each program according to the old functional maps….
I woke up with a killer headache. I use the word woke up very loosely because I haven’t been sleeping well and last night was no different. On a good note, I should reach my 12th hour of standing goal by 2pm. I’ve been going to sleep to a meditation track every night since last Friday. I started off sleeping great but then my daughter tested positive for Covid and I’ve bees stressed. My daughter is positive for Covid. My…
I woke up this morning asking myself this very question. My disability has changed so subtly but so profoundly over the 3 years I’ve been just living in my condo. I specifically remember if I’d fall I’d have to crawl to a piece of furniture to help get myself up. This chair was a major assistance piece. It was the closest furniture from the kitchen or bathroom and I used it so often to aid me back to standing. Never…
I wanted to share this morning was a link to the MS gym podcast. https://themsgym.podbean.com/ or for Apple https://podcasts.apple.com/us/podcast/the-ms-gym-podcast/id1368971662. The topic was They have various topics all relating to many obstacles and challenges we face. I highly recommend you check this out. I sometimes wonder if my blog should be a video on YouTube as opposed to the written word. In a video you’d see my real video personality and emotions. I think at some point even writing with Siri…
I was at my primary care physician yesterday because I have a cut on my shin that is infected. I had antibiotics in the house and I started to self medicate and it wasn’t really working so I got an appointment. She prescribed a stronger antibiotic and a cream but thankfully it wasn’t cellulitis or any further issue that needed more care. This was my fault. I knew it was infected for a while. My Zoey never left that spot…
