I’m a bundle of nerves which is so unlike me. Between my daughter’s school having a positive case of the virus and choosing to let her stay in Albany My daughter school has a positive case of the coronavirus I feel worried. I’m the mom, I’m supposed to protect my kid but instead I’m keeping her away from me, protecting myself. She’d rather be there, thankfully, but I know the decision is also for my own benefit. My daughter will…
So after a second day of consuming a regiment of oregano oil and using Doterra Breathe, I got into bed sneezed once and never sneezed again. Achoo-ing through the night. Woke up fine. So strange!!!! I’m doing much better with the Provigil. I’m so happy to report. I am no longer waking up exhausted as if I never slept. That has been such a huge difference that I’ve been able to get back to my life. I have still been…
I had a nurse evaluation yesterday for the agency. Nothing shocking, mostly paperwork stuff. My medications were listed for the dosage and times I take them. I’m taking 9 different medications at 48 years old. That’s a lot of pills. If you include the vitamins it’s 17. A crazy number yet they all serve a purpose and that’s what the evaluator and I were discussing. Most I take at night because they cause drowsiness so I got the warning about…
Everything worked out with the agency. They found an aid to cover the days that my normal aid is out. She is very nice and the dogs are fine. Thankfully it’s all good. I just didn’t sleep well last night. I woke up at 3am and really never fell back asleep. I was sweating all night too. Of course I was wearing a white T-shirt that my hair color has now dyed red spots on. I should have turned my…
I’m back with an agency and as of 5pm Friday they had no one for me on Monday. We are off to a great start. They told me it’s because of my dogs. They have difficulty placing aids in households with animals. Well I’m not giving up my dogs so if I have to change agencies 100 times, so be it. I’m sure my current aid, whom I love and done all this stuff for, won’t be taking time out…
Day two of waking up and not feeling tired. I can’t even put into words how great that is. I am starting to feel more like myself. I still was in bed by 8 yesterday and sleeping before 9. I also had no strength in my legs and had to transfer directly from my wheelchair to my bed. Yet all that is ok because I woke up peppy and smiling. I woke up in good spirits with energy and it…
Today is the first day I woke up not feeling tired. It was such a wonderful feeling. I haven’t had that in so long. I can’t say how the rest of my day will go but for all my bitching lately it was nice to start off my blog with some good news. I still canceled playing mahjong today. Unfortunately I knew that I probably wouldn’t have the stamina to last too long. However I still worked out. I even…
What can I say. I’ve been like a lump on a couch. I showered today, go me!! I’m exhausted 😴. I was exhausted when I woke up. My eyes feel swollen after I slept for almost 12 hours. How much more can one person say about fatigue? I’ve done nothing so I have nothing to blog about. I can tell you I’m tired of people saying me too. Anyone with multiple sclerosis or chronic illness knows there is a huge…
Still unfortunately feeling shitty. Once again canceling activities. The good news is I’m sleeping better, that really helps. Of course I’m a few weeks away from my infusion of Rituxan which had issues last time.Whether the issues were actually caused by the infusion or not, we still don’t know, but my concern is there to say the least. https://multipleexperiences.org/2019/09/17/blisters-on-breast/. Not to mention you always feel somewhat fatigued after you do the infusion so the whole thing has bad timing. I…
22 years ago started my second multiple sclerosis relapse that lead to my diagnosis five days later. My first was optic neuritis but by itself had no name. It was 6 months later on Valentine’s Day weekend when I moved into my new house and my left side started to go numb. What started in my foot quickly traveled through my entire left side up to my face. I had difficulty walking, muscle atrophy and numbness that would never fully…
