My fatigue set in very early yesterday making my evening extremely difficult. You know that things are bad when you don’t have the energy to get to the bathroom so when the urge comes it is instant dread. I have one of those hospital bed potty chair right next to me and I wear pads but I’m still trying to hold on to the last bit of dignity while I still can. Eventually I’ll loose that too so I am…
I had a lovely day yesterday. My sister and brother in law visited with their foster girls who are so precious. I was so excited for them to meet my dogs and see my wide collection of humpties that I love dearly. My dogs were a hit, my humpties showed I was young at heart and they loved being here. Win, win, win ❤️❤️❤️. Was super happy about that. My sister and I took a walk up the nautical mile…
Ok another strange and embarrassing symptom of my MS occurs for no rhyme or reason and has to do with my breasts. Specially my nipples on those breast. I go through periods where they get and stay hard for days. Sometimes it could be to the point of painful. Erect nipples is not a comfortable thing for a long duration. I apologize to any men that are uncomfortable reading this and if it turns you on, all the more power…
It’s beautiful out a cool 63 degrees and I still have to have my AC on. The only downside to my condo is it’s angle. If the wind is blowing the wrong way this condo gets no air and can become hot with the morning sun. Today is that kind of day. There is no breeze out there. I hate that. I love having all the windows open and a cool breeze blowing and I’ve been robbed of it this…
Yesterday I had my first game day with the other retired people in my condo. For some reason it ended up only being 5 of us. We played a card game called Mille Bornes. It was fun you try to travel a 1000 miles but people can give you stop cards or accidents and other things that stop your ability to move until you pick the correct card to get out of the incident. I did not win but I…
Good morning happy Monday. I thought I’d give you the rundown of how I feel a week later after my Rituxan infusion. I’m happy to say the allergic reaction is healing and I’ve had no more blisters or open sores. Very bizarre. I’m still on the antibiotic and I have two more days left. I’m glad to say I am out of the chance of infection and I’m not gonna get cellulitis. All good news. I worked out yesterday for…
Please donate to a great cause. This is my step brother Howard who bikes for me. He bikes and I can’t. I can barely walk. We need people like him out there raising awareness and funds to fight MS and find a cure. Please help him as he once again bikes for MS. ???? Hi There – It’s Howard, and I’m still out here pedaling for your donations. And now I need to crank up the email campaign – put…
So I went to my doctor yesterday for the open sores on my breast. They are actually blisters that have popped and have pus in them. The fourth spot was still in the blister form. The doctor said it was a reaction to Rituxan. As we were sitting there talking, I realized this was the first time I didn’t have Benadryl through the IV. It is shocking to have Benadryl this way because it needs to be administered very very…
I finally did it. I counted and hit my goal of 35 laps which would equal 70 lengths and exactly 1 mile swam in my pool. HUGE difference than Tuesday when I barely made it 30 minutes swimming before my arms gave out. That day I couldn’t even get out of the pool. Go figure. It is just proof of of the good and bad days of multiple sclerosis. I was so excited hitting my goal, this was a big…
My big box from the pharmacy was delivered yesterday. In it was 250mg Solumedrol, 600mg of Rituxan, and a whole bunch of syringes and needles. I’ve done these infusion for years now. I’ve done Solumedrol infusion for even longer. This time opening the box made my stomach drop. I’m dreading this infusion. I’ve done it so many times yet this time I really don’t want to do it. I’m a little afraid. Years ago I was coming off of a…
