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Tag: ms fatigue

I don’t recommend Physical therapy during the summer

I don’t recommend Physical therapy during the summer

Before I start my blog I want to wish my dear friend Hindi a Happy 50th Birthday. I love you. Have the greatest day. I’m melting. I am fully inside with the AC cranking but I feel the heat inside my bones. I was trying to transfer to my comfy chair this morning and it took me 10 minutes. I didn’t fall but my legs were like jelly. I kept having to repositioning myself to get the right stance to…

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MS won this time

MS won this time

I had a very disappointing physical therapy session yesterday. I walked about a hallway and a half. The second full hallway still being my goal but once again escaping my grasp. I got tired and tried to sit for a second or two before I started my trek home. That was probably the beginning of the bad decisions. The upright walker isn’t easy to turn around with but even harder when you are trying to turn around to sit. There…

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A better mood shift

A better mood shift

Mood has improved from last week, I am happy to say. However I might have another tough week coming up. My daughter is away and my aide is on vacation. . I chose not to replace the aide anyway because I really hate having new people in the house. They don’t know where anything is, they are usually scared of the dogs and I have to make idle chit chat that can be exhausting. It puts too much stress on…

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Kesimpta was approved

Kesimpta was approved

I broke my glass coffee pot this weekend. This seems to happen every two years if not yearly. I do have to say the last time I wasn’t the one who broke it but I shouldn’t brag because I’m pretty sure every other time it was me. I don’t buy expensive coffee pots for this precise reason but I really hated my last purchase. I always put cinnamon in my coffee grinds and this basket constantly caused the caused the…

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Friday is here again

Friday is here again

I am playing mahjong today for the first time since the coronavirus. I’m not sure how long I’ll be able to play but I am hoping I can sit for 2 hours at least. Unfortunately my wheelchair cripples me more than I’m already crippled. It’s the muscles in my core (a reader of my blog explained this to me). I’m reclined in my comfy chair, not putting strain on my muscles. In the wheelchair, I am sitting up. There is…

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Determined to walk

Determined to walk

These weeks are going by super fast. It’s Friday again already. Obviously, guess I didn’t really need to point that out. I just feel like things have been on hyper drive lately. It’s bizarre. I mean we are already through half of the year 2021. Didn’t we just celebrate the New Year? Does time speed up as you get older? I turn 50 this year, in November. I remember throwing a surprise party for my mom when she turned 50….

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Walking again

Walking again

I did good this week, despite the heat. I walked the hallway in my first real Physical therapy session on Thursday. I love the upright walker. It has made such a difference for keeping me straight when I walk. I do walk slowly. I am paying very close attention to my hips moving and my feet picking up. I do what Trevor, in the MS Gym, calls pause walking. I take my step, PAUSE, regain balance and alignment and take…

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The energy graph

The energy graph

I was taking it easy this morning with exercise because physical therapy starts today. Yet I’m huffing and puffing as I sit down to write this. I wanted to be in somewhat a stronger state because unfortunately he is coming late today, at least late to my MS body. He won’t be here until 3-3:30. This is the point in the day where my energy level starts to decrease at a rapid pace. I always say from the time I…

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My view on exercise

My view on exercise

I was watching a show about the Amish in Pennsylvania. I think what shocked me the most was some of the county’s names. I knew of Intercourse, PA but was amazed there is a place called Blue Ball, PA. It starts to make something innocent like Mount Joy, PA to maybe be not so innocent. I mean who came up with these names??? Sure you go from Blue Ball, PA and suddenly you enter Mount Joy. Happily moving to Intercourse,PA…

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When life gives you lemons

When life gives you lemons

Not one of my better weekends. The humidity picked up significantly here and my body instantly felt the difference. I had a headache all day yesterday coupled with general weakness. Just made for a very tough day. I didn’t sleep well and of course that never helps. They’ve already started setting off fireworks around me. I learned that Minx HATES the noise they make. I can only imagine what he will be like as we get closer to July 4th….

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