I haven’t slept well for two nights now. I spent the first night with those belly issues and last night with bladder issues. I was using the bathroom every hour. I honestly think this was somehow related to the infusion. I have had nights where I’ve used the bathroom frequently but every hour is something that is a rarity. Yet that was my night. This is the second day in a row that I’ve hit my 12 hours of stand,…
Yesterday was not my greatest morning. Belly issues but I was able to avoid the mess of things by getting in the shower fast enough. I made it in the middle of the night and the morning. I was so proud of myself. Such a stupid thing to be proud of, yet I was. I was until I took a slip in the shower. It’s a small space and at first I held myself up slightly but I couldn’t hold…
So far I feel fine since my Rituxan infusion, although I am all too aware it won’t stay this way. After being on Rituxan or Ocrevus for the last 4 years you kind of get a feel for these things. I do have to say I don’t feel bloated from the infusion. I think it is because I drank so much water. For some reason my mouth became Sahara desert dry during and the night after I received the medicine….
It took 4 needle sticks to get my vein for the IV yesterday. Not only stressful but painful. I may have dulled sensation on my skin but it certainly still feels needles. This was my nurses 5 infusion with me. Each time it is getting harder and harder to start the IV. Yesterday this process took us almost an hour. We had to break out the heating pad to try to warm my arm up. It eventually helped, but it…
It’s the day. It’s finally here. I’ve been doing these infusions for so many years now. I was on Tysabri for a few years prior. You”d think I’d be totally accustomed to these things by now, but I’m not. I get really anxious before the infusion starts. Partially because finding my veins for an infusion is not easy. If I’m doing blood work it’s very rarely a problem. However, whenever they have to find a place to keep an IV…
My Rituxan infusion has once again been a complete disaster getting the necessary supplies and drugs. I would love to blame it all on CVS specialty pharmacy but my doctor’s assistant is partially to blame. What started a month ago has come down to the wire yet again. My third box of supplies has just been delivered this morning. All I can say is thankfully I know how my drug is administered. If I didn’t, this would’ve been a bigger…
I’ve written many blogs showing things that I’ve accomplished over the years with multiple sclerosis. That is partially what this blog is about. There have been some in reference to my daughter https://multipleexperiences.org/2017/05/27/my-daughters-triumph-being-deaf-with-cochlear-implants/. Many about my workouts https://multipleexperiences.org/2021/01/27/im-kicking-ass/Lots about attitude and positivity https://multipleexperiences.org/wp-admin/post.php?post=2350&action=edit. However yesterday I think I had one of my biggest achievements so far, I fixed the dead bolt lock on my door. This might sound funny to you but to me it was a really big deal….
I made it through the day yesterday but barely. I was absolutely shot by the time I got home. I got everything I wanted accomplished. I officially have handicap plates on my van. They almost didn’t let me get them. I had a copy of the original DMV doctor form. I didn’t think and grabbed the copy. According to the rules they don’t accept copies. The supervisor finally came over and did a visual confirmation and accepted the form. I…
Is it really Wednesday already? This week seems to be flying by. I received my Covid test results this morning and I was negative as I expected. My county passed down new protocols for someone that was vaccinated. If they come into contact with a person who tested positive for Covid they don’t need to either quarantine or test providing they are asymptomatic. The Covid tracer people are still tracking me daily. I don’t know what to follow so I’m…
The MS gym rolled out a brand new site and program yesterday. Based on the new program and functional maps, I was supposed to go back to the beginning again. I just completed the standing strong program. Even though I completed the program, I would have repeated the phases because I was far from mastering the exercises. I have been with the gym for about a year now and I have done each program according to the old functional maps….
