Browsed by
Tag: ms life

Beautiful despite weight

Beautiful despite weight

I am out of the house early today. Sitting at my primary doctor’s office for my annual physical. Nothing exciting but I did bring up my ever nagging issue of weight. As expected I was up weight from the previous year. No matter what I do, I am always up weight. It has been extremely frustrating. I worked so hard taking weight off and maintaining that loss for years. I still work so hard to exercise to the best of…

Read More Read More

Yet another strange MS symptom

Yet another strange MS symptom

Ok another strange and embarrassing symptom of my MS occurs for no rhyme or reason and has to do with my breasts. Specially my nipples on those breast. I go through periods where they get and stay hard for days. Sometimes it could be to the point of painful. Erect nipples is not a comfortable thing for a long duration. I apologize to any men that are uncomfortable reading this and if it turns you on, all the more power…

Read More Read More

I need the alone time physically and mentally

I need the alone time physically and mentally

It’s beautiful out a cool 63 degrees and I still have to have my AC on. The only downside to my condo is it’s angle. If the wind is blowing the wrong way this condo gets no air and can become hot with the morning sun. Today is that kind of day. There is no breeze out there. I hate that. I love having all the windows open and a cool breeze blowing and I’ve been robbed of it this…

Read More Read More

Game day at the condo

Game day at the condo

Yesterday I had my first game day with the other retired people in my condo. For some reason it ended up only being 5 of us. We played a card game called Mille Bornes. It was fun you try to travel a 1000 miles but people can give you stop cards or accidents and other things that stop your ability to move until you pick the correct card to get out of the incident. I did not win but I…

Read More Read More

A week after Rituxan infusion

A week after Rituxan infusion

Good morning happy Monday. I thought I’d give you the rundown of how I feel a week later after my Rituxan infusion. I’m happy to say the allergic reaction is healing and I’ve had no more blisters or open sores. Very bizarre. I’m still on the antibiotic and I have two more days left. I’m glad to say I am out of the chance of infection and I’m not gonna get cellulitis. All good news. I worked out yesterday for…

Read More Read More

Bike MS please support my brother

Bike MS please support my brother

Please donate to a great cause. This is my step brother Howard who bikes for me. He bikes and I can’t. I can barely walk. We need people like him out there raising awareness and funds to fight MS and find a cure. Please help him as he once again bikes for MS. 🧡🧡🧡🧡 Hi There – It’s Howard, and I’m still out here pedaling for your donations. And now I need to crank up the email campaign – put…

Read More Read More

Thankful for Marshmallow and Zoey

Thankful for Marshmallow and Zoey

It is weeks like this I am so happy I have dogs. This was not my greatest week, coming off of my infusion Rituxan infusion complete, having the allergic reaction Allergic reaction to Rituxan and truthfully feeling slightly depressed and they just continued to bring a smile to my face daily. I love their unconditional love they give but I hope they feel the unconditional love I give back. When I was crabby and at a loss of patience for…

Read More Read More

A community in my condo

A community in my condo

There was a sign on the elevator in my building Knowing I was going to be home all week I definitely planned to stop by. I really had no idea what it was about but I’m always up to meeting people in my condo. When I walked in I was the youngest person by about 20 years except for one other person. This get together was to start a little weekly club for all of us home daily. Mostly the…

Read More Read More

Allergic reaction to Rituxan

Allergic reaction to Rituxan

So I went to my doctor yesterday for the open sores on my breast. They are actually blisters that have popped and have pus in them. The fourth spot was still in the blister form. The doctor said it was a reaction to Rituxan. As we were sitting there talking, I realized this was the first time I didn’t have Benadryl through the IV. It is shocking to have Benadryl this way because it needs to be administered very very…

Read More Read More

Rituxan infusion complete

Rituxan infusion complete

The nurse got there at 5:30pm so it was a long night. I knew she was coming late but once I had the day to do it in my head I couldn’t change course. She offered I refused. Anyway other than having to be stuck twice for the IV, it was uneventful. However it was long and I was tired. As soon as it was finished I got into bed and slept for a few hours but that was it….

Read More Read More

Verified by MonsterInsights