#just wanted to add this note because this was such a dismal post. A few hours after I wrote this post I realize something very important, with secondary progressive MS you are not functional one day to Stuck on the floor another. I don’t have relapses anymore. I now realize I was sick with this abscess infection and it played havoc with my MS. So yes, this is a possible future for me with MS, but it won’t happen overnight….
Last night was a very bad night. All my family and friends who haven’t heard the story I’m sorry you’ll be hearing it through my blog. I am fine. If I wasn’t I wouldn’t be writing this today. I played mahjong yesterday for the afternoon and got home around 3. I was completely exhausted more than normal. I started feeling achy as well. I think I was running a low grade fever because of this abscess on my stomach. More…
I realize something last night, for all my complaining about fatigue, I’ve been staying up most nights till 10 o’clock. If you look back to before I saw my doctor, I was in bed by eight and asleep by 8:30. https://multipleexperiences.org/2019/09/03/trip-to-the-neurologist/ This is before he gave me the Adderall. Yes, my body isn’t recovering from my exercise. Yes, I’m still exhausted and finding it hard to move about as easily as I was. However, I’m not at that stage of…
It’s another one of those weeks. I overdid it on Tuesday. Overdoing it consisted of sitting at a table helping family with papers and making some phone calls. Why I was so crippled from that I can never understand but I was….completely. Then the migraine started. That was just the beginning because I woke up Wednesday with the migraine and I was still exhausted. My aid was sick too so it was just me. I managed the day ok but…
Down I went. I was in the wheelchair all day. I walked with the walker for all of 5 steps before I missed stepped. I ended up smacking my head into three surfaces on the way down to land with the walker on top of me and my ass in the dogs water bowl. There I was stuck and dazed trying to roll myself over to somehow get up. That took longer than I care to admit. When I achieved…
I wrote a text to my mom at 5:38 that said I almost choked to death, I’m still shaking. I was certainly grateful to be able to write the text and happy to be able to write this blog. I was eating a sugar free Swedish fish and a small piece went down my throat and got stuck. I wasn’t able to cough it out at first and wasn’t able to breathe. I can’t say what happened because it was…
I was in a bad mood yesterday. I don’t normally have bad moods that last anymore but yesterday I did. I just didn’t snap out of it and truthfully I am not sure I wanted to. I was upset for my daughter Love to my daughter which certainly set the stage for my day but then just little things got to me. Dumb things. The phone constantly ringing drove me nuts. An email I was answering disappeared. My favorite shirt…
My daughter comes home for the weekend. Very happy about that. Haven’t seen her since the week after school started in August. I’ve missed that cute face. She got this great job at school working for a dog daycare called Camp Bow Wow. She loves it not only because of the dogs but the people. It is the nicest most supportive jobs environments I’ve ever witnessed. Luckily there is even a location close to us at home that she is…
Came across this exciting article about repairing myelin yesterday and I wanted to share. https://metro.co.uk/2019/10/09/can-stop-multiple-sclerosis-10875070/?ito=article.amp.share.top.email Twenty-five years ago there were no treatments for multiple sclerosis (MS) – a neurological condition that affects more than 100,000 people living in the UK. Today the picture is very different. There have been major advances in treatment and, following a series of more recent discoveries, we believe we can stop MS. We’ve reached a point where we know what’s causing the disease to progress….
It was one of those MS nights you’d like to forget about if you could. I didn’t even get warnings this time like a stomach cramp or something. I just felt like I might need the bathroom so I got up. I walked about three steps before the accident happened. As my mom says better out then in. The problem was I was alone and already exhausted so this certainly didn’t help. I showered, cleaned and changed and was just…
