Yesterday during physical therapy the first thing we did was put me on the floor to get up. I just knew I had the strength to do it at this time and the first time I got myself up fairly quickly. So we did it for a second time. This time was harder, but I still managed to get myself up. My physical therapist said I can give you pointers but nobody knows their body better than you. One thing…
Can someone please explain this weather to me? One day I’m bundled in my sweatshirt putting on the heat. The next day I’m opening windows overheating at night under my blankets. No joke!!! I overheated last night in my bedroom. It made for a very long night. I had a super difficult time getting back into my bed after one of my bathroom trips that I really contemplated sleeping in my chair. I slept with my fan on once again….
It’s 9am and I’ve already showered, worked out for 54 minutes, took care of my dogs and spoke with my mom. I’ve been up since roughly 6 when my right foot started twitching. Even though this video was taken when I was awake and in my chair, it is exactly what happens anytime and anyplace my leg twitches. Now you tell me, could you sleep through that? After the first 5-10 times it actually starts to hurt almost. My foot…
I can’t say enough good things about this guy. He is just a person size package of warmth and healing. It is nice to be the only one the therapist is focused on during an hour session as well. Even though my occupational therapist was from the same company, he was no where near the caliber of my physical therapist. My hour session were never an hour more like 30-40 minutes at best. I wasn’t complaining. He was more like…
I had my physical therapy evaluation yesterday at 3 o’clock. I thought the time alone would be a complete disaster. I worked out yesterday from 9 to 10 AM. I had my beautiful sister here from about 11 to 1:30. I I thought I was exhausted but oddly enough I really had a second wind. First I must honestly say I loved this guy. He comes into my house and the first thing he does is greet my dogs. The…
I try to do the safe things, I really do. Even when I’m trying to be at my safest I still have issues. Let’s take last night as an example. My dad called as I was about to go to the ladies room, so I told him I’d call him back in a minute. On my way back, i safely maneuver my wheelchair directly in front of my comfy chair to make my transfer. Easy and safe. As I was…
It’s 48 degrees out and I’m in a complete sweat. I haven’t even worked out yet because I have therapy this morning. I am sitting around waiting for my therapist. I have opened my windows but the breeze wasn’t enough, I just turned on my fan. I’m dressed in a thin pant and a t-shirt. WTF!!!! I just got a call my therapist is running late, thank goodness. Hopefully I can get myself cooled down before he gets here otherwise…
My handicap van, one of the most life changing things I was able purchase. This took months of research to find grants. Then after finding grants I had to first apply to each and every one of them. Coordinate the grants with each other. I had a fundraiser going in the middle of all of this trying to raise additional funds. I still had to find a van and negotiate a price. Finally I needed to get a car loan…
I truly want to write happy, uplifting blogs but I haven’t been able to do that lately. For every good day I’ve been having a few rough days following. It seems like I’ve been having more rough days than good days. Each time I think I’m through the worst of it, like my infusion, something seems to happen. If it is a tough night sleeping or a great night sleeping, I’m waking up tired. Doesn’t seem to matter. Today I…
I wrote this blog post on November 7, 2016. Almost 4 years ago to the day. I was originally going to just link it in this post when I realized I would probably be repeating the same general things. Obviously Covid has made my MS daily activities null and void but I’m not complaining. Truthfully my MS is much different 4 years later. I’m mostly in a wheelchair now. I’m in a new place, not my apartment anymore. Things are…
