I’m just having a tough couple of days. I am just so tired and my body isn’t recovering yet. I hate this feeling but I can’t even complain. I haven’t felt like this in a long, long time when my energy is drained for so many days in a row. It is a horrible feeling but I do have the means now to make things easier for me. Yesterday I did manage to do my Turbo Jam Beachbody workout. I…
I have nothing left this week. I’m just drained of all my energy. No spoons left, no reserve and no choice. We are picking up my daughter’s new car this morning so I’m up, dressed and ready to go again. I am sure it will be at least an hour signing all the paperwork and driving myself home again. Tonight is a family dinner before she leaves for school. I need a down day, I need a few down days….
Today is mahjong. I’m very excited I didn’t play last week. I’ve been very focused in the gym working my core to help me with the forward and backward movements in the game. I can normally make it through 3 1/2 hours of play but I still have issues and fatigue by the end. It isn’t as bad as the beginning when I first started to play. It is amazing what will fatigue the body. If I do a workout…
You might think that’s great you had no active lesions on your MRI, no new lesions either. Yes, it is but that is a Relapsing Remitting MS signifier that my main MS drug, Rituxan, is suppose to prevent. It is working which is definitely great. The reason I’m not celebrating is because this MRI result is only part of my picture with MS. There is another part, it is thought of as Secondary Progressive MS. Secondary progressive MS (SPMS) is…
July is ending today. I made it through the month. Only one more long month of summer to go and I should be good. It’s just these two months that are difficult for me the other 10 I can get through. However I’m still jealous of my little sister in San Francisco with that perfect mid 70’s weather year round. That would be perfect. Anyway I can celebrate successfully navigating another month of July. This was an uneventful month which…
A great way to spend the day. I have an MRI of the head and cervical spine with and without contrast. This is a long test and I have to be there 45 minutes BEFORE my appointment on top of the long test. That is for them to put in a line making it easier to add the dye during the test. Since I’m known for collapsing veins during this part, I’ll be there early. Neither of my neurologist expect…
I woke this morning with my twitches. It started up by my pelvic/hip area on the left side getting this feeling of an electric pulse. That pulse then traveled down my leg causing instant paralysis and flexing all the way to my toe. Then it stopped and released until the next pulse hit. They came every 10 minutes until I finally got up because sleeping wasn’t happening anymore. I take all my medicine at night so I can stop any…
Do you get those weird symptoms from MS? I’ve blogged about them before but sometimes they come out of nowhere and they are so annoying. Today it is like my bra is too tight and it’s cutting into the left side under my breast. Wouldn’t be so wacky if it didn’t start while I was in bed not wearing a bra!!!! Only on the left side too never the right. I’ve had this crazy feeling before actually many times and…
I didn’t cry. I didn’t leave happy but I didn’t cry. I don’t leave with good news anymore so it is hard to be upbeat. I had three things on my list to discuss: Bathroom issue Fatigue Weight All discussed in my blog yesterday Neurologist check in tomorrow. This was the outcome. Bathroom. I was correct and I’m sorry to say this is a common problem amongst people with multiple sclerosis, due to lack of muscle control to lead to…
I have one of my neurologist appointments tomorrow. I have two neurologists. One is the specialist in NYC at one of the big hospitals. She prescribes my main MS drug, currently Rituxan, plus recommends anything in clinical trials like biotin or statins. She’s a great neurologist but I don’t consider her my main neurologist. That is the one I have the appointment with tomorrow. This is the neurologist that diagnosed me 21+ years ago and has been my doctor the…
