I have this shirt that says, I’m not drunk I have MS. The shirt always makes me laugh because you really do come across sometimes like you’re completely drunk. I remember when I used to work the reason I disclosed that I had MS was for that very reason. I didn’t want to have to be drug tested at work every day. I just do the goofiest, silliest things that must look humorous to an on looker. I’ve had the…
I shared my story of my kiss last week. It was nice. The truth is I shut myself off from all relationships for over a year. That was my first kiss in 14 months. However, I’m pretty sure it was the last kiss with him. I’ve spoken to him a couple of times since then, but I think we’re going to be friends and that’s OK. When I turn this over to the universe I said the best outcome for…
In three weeks is my official diagnosis anniversary of multiple sclerosis. Today I am going to see the doctor that made the diagnosis 20 years ago. I’ve said it before in many posts, I have two neurologists for my MS. One is a specialist in New York City and one is my long time original neurologist that I’m seeing today. People might think that’s ridiculous, why do I need two? The reason I ended up with two is because none…
It’s usually my morning meditation that I decide what I want to blog about. This morning I fell back asleep during my meditation and I never got an idea of what I wanted to say. Right now I’m just staring at the water, hoping something will come to me. When your blog every day, I have to admit, some of my blogs become pointless. I have a feeling this is going to be one of them. I can tell you…
Last week it in New York it was in the single digits before you add it in the wind factor. At that point it was the negative digits. I went out to eat at a restaurant with my family. The restaurant had open windows on all sides and even though the heat was turned up, it just couldn’t compete with the cold outside. The restaurant was freezing. We were there with cousins we haven’t seen in a while so it…
I’ve lived in my condo officially two weeks today. I know I sound like a broken record and I apologize, but I just am so happy. I’m always blogging about all the bad things, living with multiple sclerosis and how tough it is, it’s just so nice to recognize the good things. Every day I say to my mom, I love this place thank you so much. I probably could say that every day and it would never be enough….
Beautiful sunny day and I wake up with a headache. You know when you just haven’t felt right? That’s how I’ve been lately. I know, I know I have multiple sclerosis. Yes, that’s very true and the chances of it being just something with my multiple sclerosis is extremely high. However I just haven’t felt right. I’m not really sure what’s up. My doctor called with my blood work and again, everything is fine. I definitely don’t have Cushing’s, diabetes…
I’m covered in ink. I have a new printer and I was finally putting it together yesterday. It has six different ink cartridges. As I was opening the ink cartridges, because my hands are all wacky I guess I was holding them wrong so the ink just kept getting on my hands. Thus, I’m covered with ink. I made a mistake with two of the cartridges and didn’t put them in right. Now I was left with the task of…
This is what the doctor firmly believes. I’ve had to slow down because the MS has disabled me and I physically can’t do much. Definitely not what I wanted to hear. However I can’t say that it’s definitely a false thought. He looked at my records over the past two years and I’ve gained a total of 6 pounds. Again you might think oh my God big deal you gained 6 pounds in two years, What’s the big deal? The…
It’s 20 years that I’ve dealt with my multiple sclerosis. When I first started doing research on my own illness, it was stated that most people go into the second stage of the disease after about 10 years. The second stage of the disease being secondary progressive MS. Most people start off in relapsing remitting and, at the time, it was said that 80 percent of people in this stage will go into secondary progressive around that 10 year mark….
