I’m very happy to report that my new aide is extremely nice, has been helpful but most importantly likes my dogs. If the person couldn’t get along with my dogs then they couldn’t get along with me. It’s only been three days now compared to my last aide of 3 years so of course there is an adjustment. Thankfully, it is not at all as difficult as I thought it could be. She lives with her sister and brother very…
There’s been a lot going on this week and I’m not sure where to begin. After being traumatized this weekend, it was hard for me to even focus on everything that was happening, and a lot was happening. My new aide started on Monday, I got an OT evaluation to start that twice a week in the house, and Mikayla left. I’m also going for a urologist appointment on Friday to discuss the Botox in the bladder. I haven’t decided…
What I don’t understand is how are you supposed to prevent things from happening? If there was something I could’ve done, I would’ve done it. What is a person with a disability supposed to do when they are alone? I just can’t understand how this situation not only could’ve been prevented but could’ve been done with any dignity whatsoever. This is the part of multiple sclerosis that I find so unfair. The embarrassment and the shame that I felt is…
I could write about my horrific Saturday night and Sunday morning I will write about it, eventually. I honestly am completely traumatized by the events that took placed. Yet I will tell the tale because i promised when I started this blog complete honesty. However I am just not ready to retake the tale yet. That’s how bad it was. So instead I’m going to leave you with a video that my dad sent me Perfect video for a great…
My daughter is packing because she’s leaving today not tomorrow. My aide of three years had her last day with me yesterday. My new aide starts Monday and is working 11-7. Not exactly the hours I wanted to change them too but it is still is better than my original hours. I can now do my normal morning routine. I prefer working out when no one is around. I always did. Now I’ll have the morning to myself. What could…
I’m doing a lot better with my new wheelchair now. I don’t love everything about the chair but I am consistently using it now. It turns horribly, I hate that. It is also difficult if you maneuver wrong and hit a wall. You can’t just do a simple correction. You have to move forward or back still hitting the wall to maneuver yourself off the wall, if that makes sense. The wheels that move this chair are in the middle…
I had a comment yesterday by Mary suggesting Botox for my many trips and accidents with the bathroom the other night. Waking up to use the bathroom all night long. I’ve heard of this treatment option but I’ve never looked into it for the one thing she mentioned, you have to self catheterize. Patty concurred with that comment this morning too. However, Mary started me thinking. I would love not having accidents anymore. I would love to stop worrying every…
You know you didn’t sleep well when it’s 8:30 in the morning and your Apple Watch already has 6 hours of standing. I wasn’t feeling good this weekend, maybe the start of a cold. I’m not sneezing but I feel congested especially in my chest. I’ve once again resorted to my oregano oil and breath oils. I feel slightly better today but a good nights sleep would have certainly helped. That did not happen. Instead I was up every two…
Not one of my better nights sleeping. I think I was up most of the night. Everything hurts. I hate that feeling. My headache isn’t helping either. I woke up sneezing so I immediately guzzled down some oregano oil. I just feel blah. I worked out and even that didn’t help. Usually bringing on a sweat helps a little but not today. I was disappointed in my heart rate and felt it didn’t register accurately. That in turn made me…
Amazon’s been promoting shark week on discovery channel for a while now. However, now the promo is Tyson versus jaws, rumble on the reef. Is this really what we’ve lowered ourselves to? I actually like shark week. They’ve actually had some really interesting programs. I think my stepdad’s told me it is the longest running cable event in history. Do really need to be promoting it alongside Mike Tyson in his boxing gloves? OK, maybe it’s just me. It is…
