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Tag: MS

Moments of my weekend

Moments of my weekend

This was a weekend of great ideas and completely mindless moments. I thought I’d share them all for you: I pulled a muscle in my butt. In my stronger leg. I was stretching in a simple position. As soon as I pulled the leg up, I felt it. No big deal except, this is normally the favored leg to push myself up to stand with. That move is freaking painful. However, I kind of don’t have a choice. It has…

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Something good about insurance

Something good about insurance

I spoke with my case manager for my insurance today. Before Covid started, I had a really wonderful case manager. Every month she’d call and check in, as per her job description, but she always made me feel like she genuinely cared. She remembered things about me not necessarily related to my medical case. Then one day she was just gone. I didn’t know if Covid was the reason for the change, if she quit or left, I just had…

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Really good multiple sclerosis research news

Really good multiple sclerosis research news

This is the best news article I’ve come along in a long time. It was titled: ‘Holy Grail’ MS discovery could prevent disability using diabetes drug For the first time in ages this talks about stopping the disability not reducing relapses. https://www.sciencefocus.com/news/holy-grail-ms-discovery-could-prevent-disability-using-diabetes-drug/ In MS, the protective coating surrounding nerves known as myelin is damaged causing them to become less energy efficient which makes them vulnerable to further damage and causes disability over time, the MS Society said. < p style=”box-sizing: inherit; margin:…

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Nobody likes change

Nobody likes change

After three years, my aid is moving on. She’s changing her hours to work 12 hour shifts each day during the weekend. This way she can make relatively the same hours in less days and be home with her son. With all the uncertainty of the schools new operating hours, who could blame her.  I witnessed firsthand what it was like when she had a homeschool her son. It was hard for every parent but exceptionally hard for someone…

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I’m a good tired

I’m a good tired

I’m tired. I start a lot of blogs like that, don’t I? I have put myself through an entire month of working out every single day. Was it worth it? Hell yeah!!! I love challenging myself through workouts. I always did.  Of course everything is completely modified because of my MS, but it’s still incredibly hard for me. On top of that though, I was busy this week. I had my friend from the building up visiting. I had…

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My wheelchair tips from the evaluators

My wheelchair tips from the evaluators

Well my appointment with my OT wheelchair evaluators was good and bad. I was having some issues transferring into my new chair. Having issues with my new wheelchair. The bad was the chair doesn’t get an lower. My therapist explained that I need to work on the ways to make transfers work and keep them safe. They definitely recommend training with a sliding board and with a one on one trainer for transfers. Since I won’t be cleared by my…

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Race against the clock

Race against the clock

I woke up this morning at 6:30 to use the bathroom and ended up waking both dogs. I tried to go back in bed for a bit but my Zoey opened my bedroom door. She likes to use the wee wee pads on the balcony instead of the bedroom. She got back into bed but Minx got up and was on his own wandering around the condo. You know that leaving a 3 month old unsupervised is not a good…

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Not your normal broken refrigerator story

Not your normal broken refrigerator story

Saturday night, I was going to heat up something for dinner. I opened the refrigerator door from my wheelchair. The door swung open as it normally does. Then it FELL OFF!!! CRASHED, more like it, into the counter next to me. Thankfully I was an inch or two behind the door and thankfully my kitchen is rather small. Unfortunately, like most refrigerator doors, all my bottles and jars were stocked on the various shelves attached to this door. When the…

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Just a Friday morning blog post

Just a Friday morning blog post

Do puppies have a terrible two? If they’re seven years to our one year, does that mean around three months that’s where these terrible two’s would start? Minxs was a pain in the ass yesterday. My daughter had a friend over, the dogs were super excited. As we were making our way to bedtime, they both got all riled up. Eventually Zoey settle down, Minx did not. I tried everything to calm him down, it wasn’t happening. I finally had…

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Fatigue, workouts, the MS gym and stuff

Fatigue, workouts, the MS gym and stuff

Good morning to all. I just sat down from my morning exercise. My body certainly feels it but my heart rate didn’t reflex the same results. I have not taken one day off since I started the MS gym program. I just changed my workouts and incorporated the gym too. The last time I didn’t close my exercise circle (the green circle) was back on June 25th. When I complete this week, I will have completed the program I signed…

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