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Tag: MS

A person meant to be in your life

A person meant to be in your life

It is a rainy, foggy and dismal day in New York. I am staying in my pajamas today and watching movies on my Firestick and couldn’t be happier. My stepdad will be over in a little while and we’re going to watch a couple episodes of Jack Ryan season two. Until he gets here and cuddled up with my puppies drinking my morning coffee. I’m just loving my life. Yesterday my handsome Firestick friend was over with his daughter. They…

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It’s almost Christmas time at my sisters

It’s almost Christmas time at my sisters

Isn’t it crazy how fast November and December go? It always amazes me. It was just my birthday at the end of November and now I’m planning my trip to go to my sister which is always for Christmas. We’re leaving in a week from Sunday. This has become our families thing to do every Christmas holiday. We go to my sister in Saugerties and spend that week with her and her husband. Now it’s her husband, her and her…

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My back can’t always hold me up anymore

My back can’t always hold me up anymore

I slept so good last night. I went to before 10:00 and slept through until 4am. Then went back to sleep until almost 9. That’s some quality sleep right there. I was woken up by my dogs running to greet my aid coming through the door. Otherwise I might have slept even longer. Guess I was tired. I’m always tired. Today is mahjong. I love mahjong but I didn’t hold up so well last week. Actually let me rephrase that,…

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Numbness in the hands

Numbness in the hands

I’m hanging with the puppies again Look I even included a makeup free version of myself. I just had my hair done yesterday so I must say the color looks fabulous though my hair needs a little straightening help. However my sweet ZoZo looks very cute on my shoulder and I had to show the picture. That’s where she loves to sleep. Marshy is sprawled across my lap. This is most mornings for me when I’m writing my blog. I…

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Another uneventful day

Another uneventful day

Another grey day in NY. Not that it actually bothers me but it did help me sleep until 8:45 today. I woke up when my dogs barked and ran off when my aid came in the apartment. I don’t know if that necessarily constitutes watch dogs since they would have probably ran off and been excited by anyone who came inside. Thankfully it was just her and my day began as normal. There isn’t much on the docket today. I…

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Swimming difficulties with multiple sclerosis

Swimming difficulties with multiple sclerosis

Good morning world. Happy Monday. It’s a dreary one here in NY, raining. That’s ok I was home today anyway. I am about to doing of my exercise programs and I’m still deciding which one to do. I might let my aid pick since I force her to exercise with me when I exercise in the house. Sometimes I purposely don’t go swimming because I want her to exercise. However I have to admit something about swimming, it’s been getting…

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Unpredictable multiple sclerosis

Unpredictable multiple sclerosis

My neurology visit was uneventful yesterday for the most part. He did a quick exam and during the exam he said I always forget how myelopathic your MS has always been. He always says that to me. First I had a remember what myelopathic meant and then I remembered what he meant. Myelopathic is referring to the spinal cord. What my doctor means is that my MS is in my spinal cord not in my brain. All my symptoms fall…

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My neurologist and me 22 years later

My neurologist and me 22 years later

It’s Friday and I’m exhausted. A shocking statement from me, right? Why do I feel like this week was so long? It just feels like I did a lot this week when I really didn’t. I am not even done. I’m off to my neurologist this morning. This is my normal MS neurologist, not the specialist. Neurologist was as expected. This is my neurologist that diagnosed me almost 22 years ago. He treats me more for my various symptoms where…

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A tough decision when safety comes first

A tough decision when safety comes first

I had another fall the other day. I wouldn’t say it was a bad one but I did hit my head on the toilet bowl. It didn’t even register as a fall in my Apple Watch. I kind of fell in slow motion and nothing hit hard but my head. I’m left with yet another bruise and another lucky incident. I’m going to run out of those. I think that life on my feet is at an end. Safety first!!!!…

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Weighted down

Weighted down

I almost signed up for Nutrisystem yesterday. Luckily my mom called and I asked her what she thought before I push the button to purchase. She talked me out of it and she made extremely good sense as to why it was pointless. Purchasing pre-portioned, vacuum sealed, preservative induced foods against what I eat normally was extremely dumb.  I eat fresh foods. I make meals from scratch. I don’t eat anything that has been processed. I read labels all…

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