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Tag: MS

I’m getting hot

I’m getting hot

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It’s getting hot outside. The summer is coming and my hibernation will begin. Most people can’t wait for the nice weather and the glorious heat of the summer, I’m not that person. I have multiple sclerosis and I am heat intolerant. Heat or high humidity can make many people with multiple sclerosis (MS) experience a temporary worsening of their symptoms. Doctors believe that this occurs because heat causes nerves (whose myelin covering has been destroyed from MS) to conduct electrical signals even less efficiently….

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I’m not mad at my multiple sclerosis anymore

I’m not mad at my multiple sclerosis anymore

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I spent many years in denial. I would pretend it was all good until I had a relapse, well at least that’s how I appeared to the outside world. Those closest to me knew me better. They were witnesses to the tears from the shots or those horrible flu-like symptoms I suffered for the first 12 years of my illness. Those shots were a constant reminder to me that I was sick. I was terrified of needles yet I learned…

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MS article for MS Focus Magazine

MS article for MS Focus Magazine

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I was asked if I’d write a paragraph or two about contacting the MS Foundation for help with purchasing my handicap van. I jumped at the chance because they have helped me a few times over the years. They are another amazing resource to those of us with MS https://msfocus.org/. This is my rough draft I’ve was diagnosed with multiple sclerosis over 21 years ago. It has been a long road with many speed bumps along the way. I first…

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My handicap van, not just for me

My handicap van, not just for me

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I hope everyone had a lovely weekend. I wasn’t able to share Mother’s Day with my daughter but I was able to share the day with my mom and stepdad. The food was fair but the company was great. We were seated at this huge table for three people and we all moved our chairs to one side to be near each other, that love. It was the first time we took my van together. My stepdad drove, my mom…

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Happy Mother’s Day to my mom

Happy Mother’s Day to my mom

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I’m happy to put this week to an end. It was a rough one for me This is not my week. My stomach is still off but I’m happy to report no accidents for one day. A small miracle. It is like an early Mother’s Day present for me. My daughter won’t be home from school for Mother’s Day. However my adopted children will give me lots of love Mother’s come in all different packages. You can be a mom…

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This is not my week

This is not my week

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I had another accident yesterday as I was sleeping. I was sleeping, how horrible is that? I was in the shower cleaning myself at 12pm. WTF????? This has been a brutal MS week for me. Between being stuck on the floor A honest look at an MS bad day and accidents this has been an extremely dis heartening week. Yesterday I scratched up my car. I’m still in my reserved handicap spot but it isn’t the van spot. I have…

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For my safety with multiple sclerosis

For my safety with multiple sclerosis

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I have many things in place that keep me safe from falls on a daily basis and I thought today I’d list each one: Hooveround MPV5 this is my everyday motorized wheelchair that I use all the time outside my condo and sometimes in my condo. Plus it is used always with my handicap vehicle. My drive rollator walker. I use this around the condo if I feel strong enough. 3. My Med Alert system. I wear my bracelet everyday….

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Why I talk about the embarrassing MS symptoms

Why I talk about the embarrassing MS symptoms

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This is in regards to a number of my blog posts like A honest look at an MS bad day orBackdoor chute suggestion worked. I talk about the embarrassing symptoms that I have that it hopefully helps someone else to feel less embarrassed. It is another part of my disease as out of my control as my gait and my numbness. It isn’t something that I can control anymore than I could control another MS symptom. I get why we…

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A honest look at an MS bad day

A honest look at an MS bad day

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I was fatigued yesterday doing my normal routine in the morning which involves cleaning up after my dogs, feeding them and morning grooming for me. I had a goal to workout. I knew I should have waited a bit since i was already fatigued but I wanted to get it over with. On top of this my stomach was bothering me. I know better for all these reasons but I pushed it anyway. Within 10 minutes of my chair Zumba…

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Thankful to my Aid

Thankful to my Aid

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It’s Saturday which means I don’t have my aid. I love my aid, I truly do. I’m so grateful for everything she does but I look forward to my weekends and my alone time. Is that bad? It is nice to get out of bed whenever I want and get dressed whenever I want. Sometimes I even stay in pajamas all day. My week is still busy enough to tire me out. It doesn’t take much. I like to watch…

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