Hello to all!!! I am still fighting the good fight here. I just got back my second urine culture which showed positive still for an infection. Yet at the bottom in this one little line is >=3 organisms probable collection contamination. Well how is that possible??? I know we got a clean sample from the source. The only thing is that my aide didn’t fully tighten the lid to the sample cup. The urine leaked out a little into the…
Good morning everyone. So, looks like my latest stretch of the last few weeks of suffering might be due to a UTI. Even though we are still waiting on the lab results, my doctor prescribed me antibiotics yesterday. However, when the culture does come back, we might have to change antibiotics based on the strain. I should’ve known. I can’t feel that area anymore yet my aide has said my urine has NOT been clear for a while now. I’ve…
I am half way through my Rituxan infusion. Chilling out watching Ink Master. I was smart this morning. I kept my arms covered despite being slightly warm. I know, all too well, that my cold arms do not help when trying to start an IV. I overheat so easily so there is usually a fan blowing right next to me. I might not feel cold but my arms and hands are always cold to touch. I kept a sweatshirt on…
I’ve been absent again. I have just had a lousy few weeks. I have had a shitty year. If you have read my blog, I have that well documented. I’m tired of dealing with all the issues that keep occurring week in and week out. I just feel like I have not had one month where I wasn’t dealing with some issues. From sickness to bedbugs back to my chronic stomach issues, I honestly feel like I can’t catch a…
I’m sneezing. My first cold of the year. I have been taking my oregano oil for a few days. It has probably helped but it hasn’t stopped the cold like it has in the past. I think things are just not affecting me the same since my whole pneumonia debacle. Oregano oil use to knock out anything as soon as I felt the twinge. Now I feel like it doesn’t do the trick. I’m not use to actually feeling run…
Have I discussed my hives with you yet. OMG, thank you multiple sclerosis for not allowing my skin to feel itching like normal people. I’ve had them for months. The spots come and go all over my arms. They seem to prefer the right arm more than the left. They weren’t this bad until recently. I’ve called my new doctor quite a few times. A doctor I was very excited to get. https://multipleexperiences.org/2022/05/04/home-visit-doctor/. She finally called me back and was…
I am still making shocking improvements. I walked my hallway in PT. I haven’t done that since last year. https://multipleexperiences.org/2021/06/18/walking-again/. I at one point had a goal to not use the wheelchair in the condo anymore. As much as I would like to believe this is still an attainable goal, it is far down on my goal list. I was amazed I have been able to walk again at all. It took almost 30 minutes to walk roughly 50 feet,…
It has taken me almost 6 months but I finally did it. I GOT UP FROM MY COMFY CHAIR. I got up by myself. I actually started standing up when my therapist was a few feet away from me. I didn’t want anyone to touch me. I knew I could get up. I didn’t want to have that hand on me for guidance. I wanted my victory. I deserved my victory. I know the walking was the biggest thing to…
I woke up yesterday and felt really good. I got up, into my wheelchair and I finally was able to stand on the scale. I held my my balance for a split second allowing the scale to actually show an accurate number. I was 138, fully dressed. I never weighed myself dressed. That is 3lbs from my ultimate weight goal. A goal I never even thought was going to ever really happen. Well I guess there is something to say…
Well I finally was able to take my MS meds again. Last time was January 19. That was Kesimpta. I made the decision to go back to Rituxan after using Kesimpta for six months. I had 3 UTI’s, Covid and a pneumonia within that 6 months. I didn’t think it was the drug for me. I have had issues with Rituxan in the past, skin issues. I can’t say all my infusions have been smooth sailing. I just never needed…
