Weight, Multiple Sclerosis and me
I had my physical yesterday and brought up my favorite topic, weight. Once again I put on a couple of pounds. This has been a very frustrating year for me when it came to weight. My doctor finally made some sense as opposed to just saying it’s your multiple sclerosis. He explained why. Yes, I do swim which is great, but I also sit around quite a bit. As my symptoms have gotten worse, my muscles have atrophied to a…
No Ocrevus infusion yet….
You just can’t make this stuff up. I think the last problem has been finding an agency to come to my home for the 5 hour infusion. The reason I say I think is because I’m not even 100% sure that is what the issue is about. If that is the hold up I told them I could do it there but now that might not be an option. I’m very confused. I’m still not sure if I’m getting the…
A beautiful rainbow
Marshy’s joy run
My sweet, smart, sneaky boy got out the other day when I was leaving for therapy. Man he is fast. If I’m in the house, sitting in my chair, you can open the door up wide, he would never leave. Once he knows I’m going out, it’s a mad dash to get out before him. I am either in a scooter or using my walker there is no such thing as a mad dash for me. I purchased a gate,…
Medical news today article about MS ‘mediator of the disease’
Interesting article in medical news today. https://www.medicalnewstoday.com/articles/323071.php?utm_medium=gplus&utm_source=dlvr.it Brain inflammation is a marker of multiple sclerosis, Alzheimer’s, and some psychiatric disorders. A new study finds a subtype of brain cell that is key in neuroinflammation, bringing us closer to new treatments for multiple central nervous system diseases. Astrocytes are named for their star-like shape. Image credit: GerryShaw Multiple sclerosis (MS) affects at least 2 million people worldwide. Recent estimates suggest that 1 million people in the United States live with the…
Keto diet for MS
Wouldn’t be me if I wasn’t extreme. Vegan to Keto, that’s extreme. Why would I even think about this? A movie called the Magic Pill on Netflix. Ironically, it was watching Forks over Knives on Netflix that I became Vegan. My diet isn’t working anymore and hasn’t been working. I’ve been maintaining a ten pound unexplained weight gain following a plant-based diet and tracking on weight watchers. This past week I put on an additional 4 pounds. I don’t eat…
Schools back reminder about oils Doterra
I can’t say enough good things about these oils. I started feeling horrible on Tuesday with a chest cold starting. I consumed my one drop of Oregano and one drop of Onguard in some water. I woke up Wednesday not much better but continued throughout the day with Oregano and Onguard. By Thursday I was feeling better. By Friday, I was fine and I have MS and a weakened immune system. My daughter, at college, said she needed Oregano and…
Pain, twitches and spasms oh my!!!
https://www.mstrust.org.uk/news/views-and-comments/neuropathic-pain-invisible-illness Neuropathic pain affects up to 25% of people with MS. It is a consequence of damage to the myelin that surrounds nerves in the central nervous system. Very commonly the pain is not due to physical damage to the nerve but as a result of a physiological change within it. This means that even when the initial cause is treated or removed, the nerve remains permanently changed and the resulting painful symptoms can become a long-term problem. Once present,…
No Ocrevus infusion today
Shocking I know. This time there is a portion of my error involved. I told them last month my secondary insurance was Aetna, technically it is not. It is only secondary for certain things otherwise my secondary is Medicaid. What I’m not in error about is once again the infusion place waited until last minute to verify insurance. Since the information was wrong, they needed more notes from my doctors and couldn’t get approval done in time to order the…
