I’ve managed to stay home since my last hospital release on March 5th. Please forgive my silence, it has taken me a while to adjust to the new me. I came home and I was still running low grade fevers up until recently. I’d wake up feeling achy most days. It is hard to try to work on strengthening your body when you feel yucky. I truthfully couldn’t get my head in the right space. I know all the positivity…
I last took a Kesimpta shot on January 19. It is now the beginning of March. I had this dilemma of being behind my shot date in January. After Covid and a UTI that put me in the hospital the first time, I needed to be well before I took my shot. That ended up being about 6 weeks after the last shot Kesimpta dosage instruction is every 4 weeks. I’ve never not taken a disease modifying therapy from the…
In the hospital that is. I was home a total of 5 days before I ended up once again in these too familiar surroundings. It started the day after I got home. I actually slid off my bed onto my stool. From there I couldn’t stand up. I had to have EMS come and get me off floor. A great beginning to being home from the hospital. That day I was spent from doing anything else. I never got out…
After 20 days in the hospital I’m happy to say I’m finally going home. I’ve had no fever for the last 5 days. My last chest X-ray showed improvement. I can breathe again. I feel like a new person. I am still getting terrible sweating episodes everyday but no one is worried. They feel it is still my body’s way of releasing toxins and infections, even without the fever. I have to say there were moments in these last 20…
Yes, I’m still in the hospital with a pneumonia. Today marks day 12. I can definitely have another blog about what is happening especially since being immune suppressed isn’t helping the situation. Most people look at February 14 as the day of love but it will never be that for me. No, for me it will always be the weekend back in 1998 when I was moving into my new house. Valentine’s weekend and my left foot started to go…
Well I actually thought for a moment I was getting better at home. Then I started having to retreat to my bed earlier and earlier from my big living room excursion. Then getting into my wheelchair started getting me breathless. Fever spiked every day. We all knew something was wrong just didn’t know the best course of action. I had set up a video call with my primary doctor which seemed to prove pointless but actually ended up starting the…
I am still here, barely. I got home from the rehab last Wednesday. It has been rough!! I fell 4 times within the first 12 hours. My strength was significantly worse than I realized. My legs couldn’t hold me up. I realized they didn’t have the strength to push from a seated position to a stand. I was bed bound. This dark cloud came over my world. I refused to talk to anyone. I cried. I am always fighting multiple…
Hello everyone, Happy New Year. I know it seems like I disappeared but unfortunately I had legitimate reasons. I ended up in the hospital last Thursday with Covid and a UTI. It wasn’t really the Covid that put me in the hospital it was the combination of the two infections. I was so weak I was having difficulty sending a text message. I spent New Year’s Eve sleeping in a hospital bed. So much for 2022 being my year. I…
Inconclusive. My bladder test was inconclusive. They said that the sample contained bacteria in their that couldn’t have come from the urine alone. I was thrilled I got urine in the cup. That was a challenge in itself for someone with multiple sclerosis and bladder issues. I even was able to use the little handy wipe they give you before you give the sample. I was so proud of myself that day. So much for that gold star. Thank goodness…
The countdown to 2022 begins. Will this be my year? It’s my number, 22. What is strange is my number 22 has been popping up everywhere. I usually ask to see it when I need a sign or I ask a question. It’s my spiritual number. However, I’m seeing it everywhere and I really don’t know why. Seeing a repeating number is like your angel pointing to you and making you feel seen and heard. They are trying to get…
