June and July down, August to go. I see the end is coming. I might survive another summer. I certainly have been in hibernation thus far, going out only when it is absolutely necessary. Yet even in my isolated state I still managed to get sick. I’m the last 14 days I’ve been to a doctor, seen my sisters, played games and mahjong with my friends in the building Far from a high interactive social calendar. Yet I woke up…
I made it through this week. It was difficult at times but I stand by my decision to not bring in a substitute aide. I did have my regular aide in for the day yesterday because I had a doctor appointment. She was so helpful that she made herself available to be here during her vacation. I didn’t even ask her, she offered immediately when she realized I had an appointment. I went to the gastroenterologist. Always dealing with the…
I had a lousy physical therapy session yesterday. Actually pathetic was more like it. Lousy multiple sclerosis day and I have no idea why. My physical therapist says he wished he had a manic pill to cure MS. I would settle for a pill that gave me the day off or even an hour off. I miss being able to dance. I’m watching this tv show about dancing and I could never move the way they do. However what I…
Mood has improved from last week, I am happy to say. However I might have another tough week coming up. My daughter is away and my aide is on vacation. . I chose not to replace the aide anyway because I really hate having new people in the house. They don’t know where anything is, they are usually scared of the dogs and I have to make idle chit chat that can be exhausting. It puts too much stress on…
I’m so glad this week is over. This week was tough. Everything that could go wrong went wrong, but dumb shit. Like knocking things over, my Apple Watch not working for a day, my Bionic Gym stopped working, the new coffee pot was delayed in delivery, and forgetting things I had planned. It was just one thing after another everyday this week. I’m exhausted. I have had a migraine for 3 days now and although today is much quieter than…
You know those days where everything that can go wrong, goes wrong. That was my yesterday. It started with me knocking into my mailbox that consists of all little Knick knacks I need to be able to access quickly plus some mail. All those little things Minx loves to try to grab and run away with. Plus so many of the items are small and so hard for me to reach from my wheelchair. Ugh a very annoying thing to…
I broke my glass coffee pot this weekend. This seems to happen every two years if not yearly. I do have to say the last time I wasn’t the one who broke it but I shouldn’t brag because I’m pretty sure every other time it was me. I don’t buy expensive coffee pots for this precise reason but I really hated my last purchase. I always put cinnamon in my coffee grinds and this basket constantly caused the caused the…
I am playing mahjong today for the first time since the coronavirus. I’m not sure how long I’ll be able to play but I am hoping I can sit for 2 hours at least. Unfortunately my wheelchair cripples me more than I’m already crippled. It’s the muscles in my core (a reader of my blog explained this to me). I’m reclined in my comfy chair, not putting strain on my muscles. In the wheelchair, I am sitting up. There is…
My neurologist and I decided we were going to switch to Kesimpta by my next infusion date. https://multipleexperiences.org/2021/04/26/possibly-switching-to-kesimpta/. My doctor wanted to start the process in July although my next infusion date isn’t until September. We entered the prescription into the pharmacy to start the process. It was less than 24 hours later that I received the denial from my insurance. The denial reason was that this medication wasn’t necessary and there may be other medication that can met my…
Good morning. I am slightly behind schedule this morning because I didn’t really feel like getting out of my bed. I slept great too. However this time it was Minx who kept moving in and out from under the covers. I finally gave up and got up. I actually ate breakfast this morning for the first time in years. I never ate breakfast so eating that early was not something I am use to. I watched this video over the…
