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Author: Youtwohearts

A day in the life with multiple sclerosis.
My Sakara Journey begins

My Sakara Journey begins

I was sent an email by my beautiful cousin about this company I never heard of Sakara. She told me I needed to check them out. Anything my cousin recommends is usually worth looking into, so I checked it out. https://www.sakara.com/. It was everything I’ve been looking for in my vegan lifestyle. I wanted a really good food delivery because let’s be honest cooking with progressing multiple sclerosis is becoming harder and harder. My meals become repetitious because it’s my…

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Time goes by quickly and slowly

Time goes by quickly and slowly

Another Friday is here. I don’t know if it’s because I’m getting older or because I don’t do much but these weeks go so fast. I’m not bored Most days I’m amazed at how fast the day went. I use to say the days go slow but the years go fast. Now it seems everything is speeding on by. My daughter is 21. She’s a senior in college. That alone is enough to shock me. However in an old draw…

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Great sleep feeling good

Great sleep feeling good

The most amazing thing happened yesterday, I slept through the night. I’m not talking about until 5 AM, I’m talking about not getting up until 8:30 AM to first use the bathroom. I don’t think that has happened to me once in the last 15 years. I couldn’t believe it. I wasn’t even about to have an accident as I emerged from my bed. I was in total bladder control. It was like a miracle, a gift from the universe….

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New links on page…Happy Birthday Lizzy

New links on page…Happy Birthday Lizzy

Still humid in NY. It rained but that didn’t help. However, i did see after tomorrow temperatures start to drop. Cross your fingers. I added another permanent link to an article that talks about different kinds of pain and how it effects sleep. That includes our wonderful multiple sclerosis symptom of restless leg which many of us deal with. They had some very useful tips so check it out. I also have the MS Gym link on my permanent links….

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My family my support

My family my support

Good Morning to everyone. I think I’m officially through all my infusion side effects now. I’m happy to say I’m doing ok. Now I’m waiting for the New York weather to start resembling normal weather for the end of September. I’m ready to turn of the AC and bring out my comfy sweatshirts I love so much. I find the fact that it is humid very annoying. I love sweating during my workouts but hate sweating when I’m not doing…

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U2 and Linkin Park my life’s soundtracks

U2 and Linkin Park my life’s soundtracks

I grew up a HUGE fan of U2. I had them plastered all over my walls, purchased everything I could get my hands on, saw many concerts. I was one of those crazy fans who even stood outside entrance doors hoping to catch a glimpse of them. If there was an event Bono was at in NY, chances were I was there if I could be. I met 3 of 4 band members. I remember telling the Edge, thank you…

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Migraines and Auras

Migraines and Auras

First let me say it is difficult to write my blog in my current position. Minx likes to snuggle in my neck. I am not complaining because they are so cute. Plus I’m not having a good day and I need a lot of love. I woke up tired and with a migraine. Not a good combination. The weather in New York is not only warm but humid. Weather, Infusion or just fatigue. I was doing my MS gym exercises…

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Weather, Infusion or just fatigue

Weather, Infusion or just fatigue

Yesterday was so rough. Like complete physical exhaustion rough. Wishing I didn’t have to use the bathroom rough. Each time I had to get up was so much effort. Is this still from the infusion? Or is this from the weather change? We’ve had some crazy weather changes over the last week in New York. One day it was 70° then all of a sudden it dropped to 50° I actually had the heat on one day. I was bundled…

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Jinx

Jinx

I’m chatting with my stepmom yesterday and the conversation about my aide comes up. First like everyone else is the question of an aide for the weekend. I am still not there as I’ve told every other family member who wants me to have the coverage. Then she asks me what about at night? To which I make the mistake of replying, “I don’t need an aide at night. I haven’t had a fall in ages. ” I immediately say…

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