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Author: Youtwohearts

A day in the life with multiple sclerosis.
The dumb things that frustrate me

The dumb things that frustrate me

Why is it simple things, never go simply? I finally got rid of cable TV. My plan went up again to almost $200!! I don’t even watch the cable. I watch everything on the firestick. I pay for extra services to avoid commercials like Peacock and Paramount. I have everything Amazon, Netflix, and Hulu. I didn’t need to be spending money anymore on cable. I finally cut the cord and got a plan that was just phone and internet. I…

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Nap time

Nap time

I took a nap yesterday. First time I did that in ages. I didn’t sleep well the night before. I knew I needed more sleep. I kept my pajamas on and stayed under my blanket. I spoke to everyone I wanted to talk. I text my daughter and mom to let them know that I was going to sleep. I even put my phone on do not disturb. Thankfully, the house phone didn’t ring through out the afternoon. I appreciate…

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Multiple Sclerosis Adapt and Accept

Multiple Sclerosis Adapt and Accept

Friday again. It was a week ago I wrote about weather changes once again affecting MS symptoms. https://multipleexperiences.org/2022/06/17/mentally-strong/. I had changed PT from Monday to Wednesday because I was having a rough day Monday. Well I guess I was having a rough day Wednesday too. I couldn’t walk five steps. So much for my goal of walking the hallway and back to my condo door. It wasn’t even close. I honestly couldn’t walk a few feet out my door. I…

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That’s a lot of Empty Space

That’s a lot of Empty Space

I had my first big outing yesterday. I went with my stepdad to take Zoey to the vet. I wasn’t driving but I’ve been a passenger many times while he drives. I even went into the vet with Zoey. I saw people other than my family and close friends. That was a big deal. Thankfully Zoey is doing better. She will be on gabapentin for an extended period of time, possibly her life. I told her I have gabapentin on…

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Cleaning up my happy place

Cleaning up my happy place

I’ve been fixing my bedroom this weekend. It was a beautiful weekend to clean. I was able to open my windows and let the fresh air in. I love that. I even had my wheelchair raised as I worked out in the morning so I could view the water. I even tried to hang out in the other side of my bed on Saturday. I was hoping I could view the water while I was in my room, watching TV….

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Mentally Strong

Mentally Strong

I am still running on empty this week. It is very strange, I walked the furthest I walked on Monday. Wednesday and Thursday I’ve had difficulty standing up and transferring. When I say difficulty, I mean it’s been harder than it’s had been over the previous weeks. It is requiring more energy to get myself up into the standing position. It is more laborious moving my feet. Good MS days and bad days. I have had some pretty intense workouts…

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Happy in my Bedroom

Happy in my Bedroom

I’ve been sleeping so well since the hospital days. That is until the last few nights. I was up every hour one night. The next night I was up for a prolonged period of time for no apparent reason. I am now functioning on day two without sleeping well. I’m freaking tired. I am running out of steam way to early in the day. It is the reason why I do everything first thing in the morning. I did have…

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Hives Everywhere and No Bees

Hives Everywhere and No Bees

Have I discussed my hives with you yet. OMG, thank you multiple sclerosis for not allowing my skin to feel itching like normal people. I’ve had them for months. The spots come and go all over my arms. They seem to prefer the right arm more than the left. They weren’t this bad until recently. I’ve called my new doctor quite a few times. A doctor I was very excited to get. https://multipleexperiences.org/2022/05/04/home-visit-doctor/. She finally called me back and was…

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Poor Zoey

Poor Zoey

My sweet Zoey sprained her back somehow. Imagine seeing this cute face in pain. You don’t even know what is going on. She started having these periods where she’d be shaking. I knew something was off but I couldn’t tell what it was. She was eating and drinking l. She was just off. Then she wouldn’t eat. I immediately made a vet appointment. I am so thankful for the help of my adopted family. (The best thing that came out…

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Always Fighting

Always Fighting

Some days are better than others. I walked the hallway again yesterday and it was so hard. Ok, it was hard the first time I did it but it was so much harder yesterday. My right leg, which is normally the leg that gives less issues, was very difficult to move. It was difficult from the hip flexor. I had problems moving the leg forward. My left leg, which normally drags, has difficulty clearing a step without my foot impeding…

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