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Tag: bad ms days

Exercising is not optional

Exercising is not optional

I truly want to write happy, uplifting blogs but I haven’t been able to do that lately. For every good day I’ve been having a few rough days following. It seems like I’ve been having more rough days than good days. Each time I think I’m through the worst of it, like my infusion, something seems to happen. If it is a tough night sleeping or a great night sleeping, I’m waking up tired. Doesn’t seem to matter. Today I…

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Happy Birthday to me

Happy Birthday to me

https://youtu.be/emapZzstxzU Another year has gone by and another number added to my years alive. I certainly am not complaining. I am actually grateful. Things were really good this year. My life was completely changed by many people, friends, family and others that barely know me contributing to my fundraiser for my van. This was at the perfect time when walking with my walker was becoming too difficult. This van gave me freedom. I was able to conserve energy that I…

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I’ve fallen and I can’t get up

I’ve fallen and I can’t get up

Last night was a very bad night. All my family and friends who haven’t heard the story I’m sorry you’ll be hearing it through my blog. I am fine. If I wasn’t I wouldn’t be writing this today. I played mahjong yesterday for the afternoon and got home around 3. I was completely exhausted more than normal. I started feeling achy as well. I think I was running a low grade fever because of this abscess on my stomach. More…

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Tough morning

Tough morning

I got rid of the migraine that I had for three days straight. Nothing worked until I used a little medicinal marijuana for the first time in years. That at least took the edge off because it helped release the spasticity through my back. I woke up this morning ready to take on the day pain free. I wanted to swim this morning first thing. I was excited to once again try to hit my mile goal swimming laps. I…

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A honest look at an MS bad day

A honest look at an MS bad day

I was fatigued yesterday doing my normal routine in the morning which involves cleaning up after my dogs, feeding them and morning grooming for me. I had a goal to workout. I knew I should have waited a bit since i was already fatigued but I wanted to get it over with. On top of this my stomach was bothering me. I know better for all these reasons but I pushed it anyway. Within 10 minutes of my chair Zumba…

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I’m on vacation my MS is not

I’m on vacation my MS is not

It’s been less than 48 hours that I’ve been on vacation and my multiple sclerosis has not been easy. Half of my clothing I’ve worn so far has been washed due to bladder issues. Not a fun way to start. Really MS, you couldn’t keep that shit together for a few days? I’ve had countless people helping life me feet up small steps or onto golf carts from my family to hotel staff because my legs are far from cooperating….

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Oops I did it again

Oops I did it again

I am so run down again and I don’t even know what I did. Of course I do, it was the stress of the parking space that I’ve dealt with for the last week https://multipleexperiences.org/2018/08/08/he-called-me-a-bad-name/. Ever since I stopped working, I have very little stress in my life. Aggravation, yes with my insurance company I deal with that all the time. For some reason every now and then I get into some sort of stress situation my body just can’t…

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Running on empty

Running on empty

Man I am beat. I am so tired and I’ve really done nothing but what I’ve done is enough to exhaust me. July has certainly has been a very tough month for me. It started out with my insurance changing to Medicare. Goodbye referrals!!! However, I also had many doctors appointments appointment scheduled because of it. Then I ended up with cellulitis at the beginning of July. July 9 actually was my first trip to the emergency room. I know…

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The girl that says No

The girl that says No

I hate being this person. I hate making the decisions and choices and saying No to things because “I don’t feel good”. I’m use to all this garbage but I still hate it. I got a long week coming up. And I just haven’t been feeling great. I canceled a lot of stuff over the last two weeks and I’m happy to say that at least I could. I’m lucky that I’m in the position and I have the option…

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Bad MS day

Bad MS day

Yesterday was a tough one. From the moment I woke up, to the moment I went to bed. I even slept for 12 hours. It started first thing in the morning, I fell almost to soon as I got out of bed. The spasticity in my body was at an all time high. I really wanted to take a second neurontin, but I know that can make me very loopy and would make my walking even harder. Since I was…

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