I got rid of the migraine that I had for three days straight. Nothing worked until I used a little medicinal marijuana for the first time in years. That at least took the edge off because it helped release the spasticity through my back. I woke up this morning ready to take on the day pain free. I wanted to swim this morning first thing. I was excited to once again try to hit my mile goal swimming laps. I…
I was fatigued yesterday doing my normal routine in the morning which involves cleaning up after my dogs, feeding them and morning grooming for me. I had a goal to workout. I knew I should have waited a bit since i was already fatigued but I wanted to get it over with. On top of this my stomach was bothering me. I know better for all these reasons but I pushed it anyway. Within 10 minutes of my chair Zumba…
It’s been less than 48 hours that I’ve been on vacation and my multiple sclerosis has not been easy. Half of my clothing I’ve worn so far has been washed due to bladder issues. Not a fun way to start. Really MS, you couldn’t keep that shit together for a few days? I’ve had countless people helping life me feet up small steps or onto golf carts from my family to hotel staff because my legs are far from cooperating….
I am so run down again and I don’t even know what I did. Of course I do, it was the stress of the parking space that I’ve dealt with for the last week https://multipleexperiences.org/2018/08/08/he-called-me-a-bad-name/. Ever since I stopped working, I have very little stress in my life. Aggravation, yes with my insurance company I deal with that all the time. For some reason every now and then I get into some sort of stress situation my body just can’t…
Man I am beat. I am so tired and I’ve really done nothing but what I’ve done is enough to exhaust me. July has certainly has been a very tough month for me. It started out with my insurance changing to Medicare. Goodbye referrals!!! However, I also had many doctors appointments appointment scheduled because of it. Then I ended up with cellulitis at the beginning of July. July 9 actually was my first trip to the emergency room. I know…
I hate being this person. I hate making the decisions and choices and saying No to things because “I don’t feel good”. I’m use to all this garbage but I still hate it. I got a long week coming up. And I just haven’t been feeling great. I canceled a lot of stuff over the last two weeks and I’m happy to say that at least I could. I’m lucky that I’m in the position and I have the option…
Yesterday was a tough one. From the moment I woke up, to the moment I went to bed. I even slept for 12 hours. It started first thing in the morning, I fell almost to soon as I got out of bed. The spasticity in my body was at an all time high. I really wanted to take a second neurontin, but I know that can make me very loopy and would make my walking even harder. Since I was…
My MS therapist was here yesterday. She was doing some balance stuff with me in the pool observing my core. She said you should be walking now without the rollator. Not without help mind you, but with canes. My back is so straight I should be able to be upright, not leaning over with the rollator. So that is the new game plan, to start teaching my legs to walk again with two canes for balance. We did a practice…
I’ve written in my blog, some time over the past week, that my knees are so sore from crawling around when I’m on the floor and I have to find a place to help me stand up. Yesterday was just a bad MS day. I was frustrated, I was having difficulty walking and it just seemed I ended up with my knees down on the ground, not in falls, but I had to keep crawling around to help myself stand…
I don’t know how babies do it, they spend months crawling around before they walk. Unfortunately, I’ve had to learn to crawl again. It’s part of the last five months of physical therapy. Crawling forward and back every time I was there. Why? If you don’t have MS you might not know why, if you have a MS you unfortunately know why. It’s because sometimes when I’m on the floor I can’t get myself back up. This could be because…
