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Tag: difficulties with ms

I’d love a day off from my symptoms

I’d love a day off from my symptoms

Well good morning to everyone. Happy Monday. I am dictating this through my new iPhone. Hopefully the dictation goes better than the old phone, after all the issues I’ve had dealing with the purchase of this new phone, at least something needs to go right.You can’t make this up….  I must say, so far, it’s working really well. I’ve had a tough weekend, I’m still just not feeling great, not sickness wise, more MS issues. i’ve slept in every…

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I’m in a mood today

I’m in a mood today

I wasn’t feeling well all day yesterday. I actually napped most of the day. Well I had the TV on and my eyes closed. For me that’s pretty much napping. I just didn’t feel well. No fever, no aches but my muscles felt sore. That was the best way for me to describe it. I went to sleep early but unfortunately that didn’t go off quite as I intended. At about 2 o’clock I was woken up with bathroom issues….

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Covid vaccination information for MS patients

Covid vaccination information for MS patients

Happy New Year, Welcome 2021. Now what? Holidays are over and after I always feel an unsettling, like what do we look forward to now. I think it happens for me because I love the fall season. My birthday is in November so I like that whole line of October toward. I love when the season starts to change and I can break out my sweatshirts for the first time. When I first start getting cozy at night under my…

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My aide is back and helpful tips from my Aunt

My aide is back and helpful tips from my Aunt

Hello again, it is once again Monday. I’m very happy to say my aide will be here today. Unfortunately, it will take me some time to recover from the last week doing it mostly alone. Even having food prepared and only doing what I absolutely had to do, it was a rough week. There is a reason I have an aide. I sometimes feel like it is really just to babysit me but truth is the amount of energy it…

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My review of the massage gun

My review of the massage gun

I have to talk about my purchase of the massage gun. A massage gun for spasticity. I wanted one for some time but kept putting it off. They weren’t cheap. I kept thinking is they’d be like those massagers you got at drugstore that you used for a week and never used it again. These are NOT the ones sold at the drugstore. I learned that really fast. First thing these are super powerful. I have not had the power…

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Mid week review

Mid week review

Well the major snowstorm that is going to pound the northeast is going to leave significantly less on part of Long Island. I’m located in that part. We should only see 3-5 inches by the end. We will get the sleet mixed with rain making for a more snowy mess than a beautiful snowy blanket. Oh well. I still haven’t had my aide so it’s been just me holding my own. I’m doing ok. I of course haven’t been able…

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80’s item to solve current day MS issue

80’s item to solve current day MS issue

Another night of interrupted sleep. You know it was a bad night when you already have 6 boxes of stand credit on your Apple Watch that just reset at 12am. I was up every other hour to use the bathroom. The only time I actually slept longer than two hours was from 6:30-9. I wish someone could explain that one to me. I don’t drink a lot at bedtime. I didn’t even use the bathroom that frequently during the day….

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New Apple Watch fitness suggestions

New Apple Watch fitness suggestions

I have a bond to pick with my Apple Watch. In the fitness settings there should be a track for disabled. That track should be worth double of that of a person who is well because each move for me is 10 times harder. My heart rate tracker I’ll never understand, I’m huffing and puffing and it’s saying like 109. I think as someone disabled I should be earning double the calories burned as well as earning double the time…

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Happiness is two dogs and a comfy chair

Happiness is two dogs and a comfy chair

I’m exhausted. I just can’t start this blog any other way. I’ve been tired all week, shocking, I know. I think a major part of my fatigue has been the broken arms of my wheelchair. It was so difficult to get myself in position with that broken arm. I had my appointment yesterday. They were coming between the hours of 12-4. They showed up at 6:45. I was just so thankful they came I didn’t care what time it was….

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A massage gun for spasticity

A massage gun for spasticity

Yesterday I purchased one of those massage guns. I’ve been looking at them for a while because sometimes I’m in such pain from spasticity. Last night was one of those nights where out of nowhere my whole back a neck tightened. I always describe this like someone took a fork and twisted it like they were trying to get spaghetti twirled around. Except it’s not spaghetti it’s my tendons. The area just becomes so tight so fast. It starts at…

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