Please donate to a great cause. This is my step brother Howard who bikes for me. He bikes and I can’t. I can barely walk. We need people like him out there raising awareness and funds to fight MS and find a cure. Please help him as he once again bikes for MS. 🧡🧡🧡🧡 Hi There – It’s Howard, and I’m still out here pedaling for your donations. And now I need to crank up the email campaign – put…
So I went to my doctor yesterday for the open sores on my breast. They are actually blisters that have popped and have pus in them. The fourth spot was still in the blister form. The doctor said it was a reaction to Rituxan. As we were sitting there talking, I realized this was the first time I didn’t have Benadryl through the IV. It is shocking to have Benadryl this way because it needs to be administered very very…
The nurse got there at 5:30pm so it was a long night. I knew she was coming late but once I had the day to do it in my head I couldn’t change course. She offered I refused. Anyway other than having to be stuck twice for the IV, it was uneventful. However it was long and I was tired. As soon as it was finished I got into bed and slept for a few hours but that was it….
I finally did it. I counted and hit my goal of 35 laps which would equal 70 lengths and exactly 1 mile swam in my pool. HUGE difference than Tuesday when I barely made it 30 minutes swimming before my arms gave out. That day I couldn’t even get out of the pool. Go figure. It is just proof of of the good and bad days of multiple sclerosis. I was so excited hitting my goal, this was a big…
My big box from the pharmacy was delivered yesterday. In it was 250mg Solumedrol, 600mg of Rituxan, and a whole bunch of syringes and needles. I’ve done these infusion for years now. I’ve done Solumedrol infusion for even longer. This time opening the box made my stomach drop. I’m dreading this infusion. I’ve done it so many times yet this time I really don’t want to do it. I’m a little afraid. Years ago I was coming off of a…
I just got off the phone with my neurologist, we are going to stick with the Adderall for now. I mentally feel great physically I feel ehhh. The good thing about it is I’m chipper again because I’m not falling asleep feeling like I’m in a cloud. That’s the good news. I don’t feel tired even though my body gives out. I’m venturing out today to play mahjong and be amongst friends. Tomorrow I’m having dinner with my friend. Other…
I got rid of the migraine that I had for three days straight. Nothing worked until I used a little medicinal marijuana for the first time in years. That at least took the edge off because it helped release the spasticity through my back. I woke up this morning ready to take on the day pain free. I wanted to swim this morning first thing. I was excited to once again try to hit my mile goal swimming laps. I…
Hello Saturday and a beautiful one at that. I have all my windows open to a quiet street. The bars by me are done for the summer season and it gets so peaceful here. Look at that beautiful water so calm. Understand I took this picture from inside my house on my comfy chair. If I went to where my Marshy was sitting it would have been even better. However I have no need the view is breathtaking. It has…
Ok where to start… I took my first dose of Adderall yesterday and I must say by the late afternoon I was feeling pretty upbeat. Today is day two and I honestly have no idea if I even took it. Right now I don’t feel as awake as I did yesterday. I’m feeling wiped out and it’s only 10am. I didn’t even exercise yet. My infusion for Rituxan is scheduled for September 15. I made so many calls to get…
My dogs like candy corn. What a strange thing for them to eat!!! Both of them gobbled every piece I put in front of them. I ate candy corn for lunch and dinner, good diet. I had a very long day and didn’t eat until after 5 o’clock. By then I just grabbed food. I went to the grocery store and I’m a sucker for candy corn. I wasn’t planning on eating it but my night when I got home…
