I had the best nights sleep I had in a long time. I woke up once at 1am to use the bathroom and then slept right on through until 7:22 when the bathroom called again. That is a long stretch of time for me. I needed that!!! I could still sleep more truthfully but it was time to start my day. Plus my cell phone went off and I answered it. I normally go to the gym today but decided…
My little sister is in from California today. Yippee. She has both my niece and nephew with her and I’m really excited to see them. It is hard having a sibling that is literally across the country. I don’t get to see her as often as I’d like. This is the one who is the closet thing I could have to a twin. She’s Jamie west and I’m Alyssa east. We just always seem to like the same things or…
I just woke up feeling good today. Not so much MS good but mentally good. I should have said happy because that’s what it was just happy feelings. I always wake up and pet the dogs before getting out of bed. It is my morning ritual and both dogs know it. Marshy, who sleeps under the covers, emerges when he hears my voice and comes nuzzling next to me and immediately gives me his tummy to scratch. Zoey, who is…
It’s my birthday and it falls on the day to be thankful this year. I have so much to be thankful for despite having multiple sclerosis because there is so much good in my life. I’m thankful for my ex-husband because in meeting him and falling in love, we produced my daughter. I’m thankful for my daughter. My world and my younger counterpart. The best present I ever received. My beautiful girl who has grown up to be a very…
I did something I never do, I put physical therapy with occupational therapy. This is the fatigue kind of exhausted where everything in my body is just done. I did it because I had to cancel on Friday for good reasons. I’m going away. First I’m going to parents weekend and seeing my daughter in Albany. Then I’m going to spirit junkie master class 2. I did the first class over a year ago in NYC https://multipleexperiences.org/2017/05/30/mandatory-sisters-to-voluntary-best-friends/. I wrote this…
Where to begin. Saturday on my way to a lovely, relaxing nail appointment, when I opened my condo door I was greeted with five movers to my across the way neighbors condo. They were moving. That wasn’t the issue, it was my dog Marshy who saw them too and bolted. I was unprepared. He took off down the corridors of my condo. It’s not like I could run. I can barley walk. I’m trying to keep Zoey in the condo…
My little sister lives clear across the country. We have so much in common someone once said she’s Jamie West Coast and your Alyssa East Coast. That works for me. Today my sister is on the east coast with my niece and nephew. I don’t have all of my sisters together, since my older one is upstate, but 3 of us are. We all get along really well and I’m so excited. She is here until Wednesday, I think. We…
I slept last night. That makes a huge difference. I also got them to stop the saline drip that wasn’t necessary and truthfully was torture for an MS patient with bladder issues. I was peeing every 20-30 minutes yesterday. I took a second bladder urgency pill I am prescribed last night which helped me sleep and cut the bathroom trips down to every few hours. I also used a commode next to my bed. It just went smoother. The doctor…
I think I could just write the title and stop there. It was a big deal for me. I worked very hard to get into the size 8 that I was. More importantly I stayed in that size for eight years. I still have no answers to what’s going on and why my weight keeps coming on the way it is but it is but I can’t stop it. I’m doing all the right things and it’s just not coming…
