Today is the first day I woke up not feeling tired. It was such a wonderful feeling. I haven’t had that in so long. I can’t say how the rest of my day will go but for all my bitching lately it was nice to start off my blog with some good news. I still canceled playing mahjong today. Unfortunately I knew that I probably wouldn’t have the stamina to last too long. However I still worked out. I even…
What can I say. I’ve been like a lump on a couch. I showered today, go me!! I’m exhausted ?. I was exhausted when I woke up. My eyes feel swollen after I slept for almost 12 hours. How much more can one person say about fatigue? I’ve done nothing so I have nothing to blog about. I can tell you I’m tired of people saying me too. Anyone with multiple sclerosis or chronic illness knows there is a huge…
Still unfortunately feeling shitty. Once again canceling activities. The good news is I’m sleeping better, that really helps. Of course I’m a few weeks away from my infusion of Rituxan which had issues last time.Whether the issues were actually caused by the infusion or not, we still don’t know, but my concern is there to say the least. https://multipleexperiences.org/2019/09/17/blisters-on-breast/. Not to mention you always feel somewhat fatigued after you do the infusion so the whole thing has bad timing. I…
This is week two that I am am starting cancel my activities. The extreme fatigue has not left nor given relief. My prescription has been changed from Adderall to Provigil but the pharmacy had to order the drug. It should be ready today. I found a bottle of slightly out of date pills in my medicine cabinet so I started taking them as of Saturday. Unfortunately, it hasn’t helped. I’m hoping it is just because they are out of date….
Back to feeling rundown again. Spent yesterday morning in bed with a migraine. Migraine is gone but I’m still exhausted. I went into bed before 9pm yesterday and slept straight through until 4:30am. That is a record. I went back to sleep and woke up at 8:44. I had to take my car in first thing this morning otherwise I might have spent another morning in bed. This is a rough feeling as anyone with multiple sclerosis can tell you….
I had my first physical therapy appointment of the year yesterday after my occupational therapy. I knew I’d be exhausted after but I completely underestimated how exhausted I’d actually be. It took me hours to be able to move out of my chair when I got home. Hours!!!! I’m working with a new therapist. She is very nice but she is going to be tough. No different then the other girls I’ve worked with but the difference is she is…
I ended up giving myself an easier week. I needed that. I was too run down trying to do everything. I think I’m feeling somewhat more together again. I love being part of all my activities but in truth they can also take a toll on me. This week I had to pay closer attention and not participate in everything to the fullest. Guess what, my friends are still my friends. No one was offended I cut out early and…
It happened again, I ended up on the floor and couldn’t get up. However how it happened was slightly comical. I ran myself over with the wheelchair. My sweatshirt got caught on the control as I was making my transfer to my chair. I got knocked over with my arm still attached to the chair. If it was on video, trust me we’d all have a laugh. This is why they always tell you to shut off the wheelchair when…
Yesterday was the first time I actually went from my wheelchair directly into my bed. My daughter left to go back to school and I am once again alone in the house. I must say the realization of that fact became very clear when I realized how fatigued my legs were. I did a long workout program in the morning because I felt up to the challenge. I always do my hardest program on Sunday because I’m home all day,…
I’m not sleeping well which is unusual for me. Sleeping has never been my problem. I can sleep all day and night normally other than getting up for bathroom breaks. Once in a while I deal with spasticity issues that plague my sleep. That can last for a night to a week to a month but that is sporadic and the medications I take at night normally do a good job preventing those episodes. I take baclofen, neurontin and flexeril…
