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Rituxan infusion scheduled in a week

Rituxan infusion scheduled in a week

I can’t believe it’s been six months already. Well I guess it has because all my reminders went off. Actually about a week after my last infusion I started receiving phone calls to set up my appointment. It was crazy. Actually I thought CVS specialty pharmacy was crazy. I never used them for my Rituxan or my Ocrevus so I was so confused why they kept calling me. Sure enough another change with my insurance. Great, because those have always…

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Something good about insurance

Something good about insurance

I spoke with my case manager for my insurance today. Before Covid started, I had a really wonderful case manager. Every month she’d call and check in, as per her job description, but she always made me feel like she genuinely cared. She remembered things about me not necessarily related to my medical case. Then one day she was just gone. I didn’t know if Covid was the reason for the change, if she quit or left, I just had…

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Migraines, prescriptions , migraines and more prescriptions

Migraines, prescriptions , migraines and more prescriptions

I have been fighting migraines since Saturday. During my teleconference with my neurologist he informed me that my insurance company was no longer going to cover my Relpax prescription. These are the pills I take when a migraine gets really bad. My prescription fills at 6 pills per month under the generic version Eletriptan. They gave my doctor two other options to try. The first one he gave me was Rizatriptan. A dissolvable pill that you place on your tongue….

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A week after Rituxan

A week after Rituxan

I went through my blog posts because I couldn’t remember how many times I’ve done Rituxan. I made the switch from Ocrevus back to Rituxan for the March 2019 infusion. This is my 3rd time. I was on Rituxan at an earlier time but was forced to change when Ocrevus came out. My insurance company, at the time, would not authorize Rituxan because it was not approved for multiple sclerosis. I than changed insurance companies once again and asked to…

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But it isn’t even 11am…

But it isn’t even 11am…

I was so happy to have nothing to do today. This week has been long already. However within the first hour of waking I realized things weren’t going to be as smooth as I would have liked. It started with a notification from Quest Labs. That is just one of the labs out here I do bloodwork at. Since my last bloodwork was done with my doctor on Tuesday at LabCorp I was curious what this was. It was on…

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Infusion coming up the switch from Ocrevus to Rituxan

Infusion coming up the switch from Ocrevus to Rituxan

So my infusion is coming up and I’m waiting on authorization. I’m switching back to Rituxan hopefully because I personally feel slightly safer on the drug. However I can only imagine what this will do with the authorization of the drug. Ironically my last infusion my pharmacy had Rituxan on the approved list but not Ocrevus. It took my a while to get Ocrevus approved. Now that I’m switching again to a drug that is technically not approved for MS…

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A nurse assessment today

A nurse assessment today

Today my insurance company is sending in a nurse to do a six month review. This review dictates my aids hours and you just never know what is going to happen. I was changed to this plan back in July of 2018 when I became Medicare eligible. They continued with the same level I was currently receiving. My aids hours are actually covered through my secondary plan which is a Medicaid HMO plan. I have never had a problem with…

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Negativity and the ego

Negativity and the ego

I worked really hard to put up my long-term Medicaid page and I promoted it on Facebook. https://multipleexperiences.org/nys-long-term-community-medicaid/I’ve gotten a lot of negativity from people and it got very hard to remember why I did it. I didn’t do this to make a quick buck. When I used to consult for Medicaid, I used to get $200 for the consultation that was before I even touch the application. I set this up for the people that don’t understand Medicaid and…

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Another nursing assessment today

Another nursing assessment today

The assessment today though is important because it’s with my actual insurance company. I already spoke to my case manager who is so awesome and called me back on her private line. She explained to me if they try to give me less hours not to sign anything. This way the case goes into review and more than just this one nurse assessment has a say in my hours allocated. I’m not nervous because it is what it’s going to…

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2nd medical insurance assessment for home health services

2nd medical insurance assessment for home health services

My agency where my aid comes from that I been using for over a year is not acepting my insurance anymore. I have the option to change insurance companies and continue to use my agency or I just have to find a new agency. Right now with my current insurance, I receive five days a week, eight hours a day of home health aid services. I had an assessment last week and where they only offered me five days a…

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