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The replacement aid

The replacement aid

I’m doing better with the spasticity. I was never a person who thought Baclofen really did anything. I’ve taken 10mg a day, as preventative, for as long as I can remember. Well increasing it to 20mg twice a day has definitely did something. The constant dull ache I’ve had in my lower back has almost completely subsided. I am able to bend my legs to get up more often than not now. I’m not cured but doing much better. I…

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Intake with Suffolk Independent Living Organization

Intake with Suffolk Independent Living Organization

Yesterday started with a bang, and not a good one. Unfortunately, I heard a crash of what only could be a car hitting something. I got up quickly to look, startled. Well you can imagine how that went. I realized quickly that in case of an emergency, don’t ever count on me. In my startled reaction to the sound, I got up and fell. It took me some time to get myself up. Thankfully, there were many people from my…

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A Blue Tuesday

A Blue Tuesday

I was feeling slightly blue yesterday for no reason in particular. I slept in, not really wanting to get out of bed, but nature called. I did a workout but is was below even my lowest of standards. I just had no energy and I was trying to lift weights. I just had a difficult time with each move even at low weights. I certainly didn’t get any feel good endorphins from my pitiful workout. I got a lot accomplished…

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Kesimpta was denied

Kesimpta was denied

My neurologist and I decided we were going to switch to Kesimpta by my next infusion date. https://multipleexperiences.org/2021/04/26/possibly-switching-to-kesimpta/. My doctor wanted to start the process in July although my next infusion date isn’t until September. We entered the prescription into the pharmacy to start the process. It was less than 24 hours later that I received the denial from my insurance. The denial reason was that this medication wasn’t necessary and there may be other medication that can met my…

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Rituxan infusion scheduled in a week

Rituxan infusion scheduled in a week

I can’t believe it’s been six months already. Well I guess it has because all my reminders went off. Actually about a week after my last infusion I started receiving phone calls to set up my appointment. It was crazy. Actually I thought CVS specialty pharmacy was crazy. I never used them for my Rituxan or my Ocrevus so I was so confused why they kept calling me. Sure enough another change with my insurance. Great, because those have always…

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Something good about insurance

Something good about insurance

I spoke with my case manager for my insurance today. Before Covid started, I had a really wonderful case manager. Every month she’d call and check in, as per her job description, but she always made me feel like she genuinely cared. She remembered things about me not necessarily related to my medical case. Then one day she was just gone. I didn’t know if Covid was the reason for the change, if she quit or left, I just had…

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Migraines, prescriptions , migraines and more prescriptions

Migraines, prescriptions , migraines and more prescriptions

I have been fighting migraines since Saturday. During my teleconference with my neurologist he informed me that my insurance company was no longer going to cover my Relpax prescription. These are the pills I take when a migraine gets really bad. My prescription fills at 6 pills per month under the generic version Eletriptan. They gave my doctor two other options to try. The first one he gave me was Rizatriptan. A dissolvable pill that you place on your tongue….

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A week after Rituxan

A week after Rituxan

I went through my blog posts because I couldn’t remember how many times I’ve done Rituxan. I made the switch from Ocrevus back to Rituxan for the March 2019 infusion. This is my 3rd time. I was on Rituxan at an earlier time but was forced to change when Ocrevus came out. My insurance company, at the time, would not authorize Rituxan because it was not approved for multiple sclerosis. I than changed insurance companies once again and asked to…

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But it isn’t even 11am…

But it isn’t even 11am…

I was so happy to have nothing to do today. This week has been long already. However within the first hour of waking I realized things weren’t going to be as smooth as I would have liked. It started with a notification from Quest Labs. That is just one of the labs out here I do bloodwork at. Since my last bloodwork was done with my doctor on Tuesday at LabCorp I was curious what this was. It was on…

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Infusion coming up the switch from Ocrevus to Rituxan

Infusion coming up the switch from Ocrevus to Rituxan

So my infusion is coming up and I’m waiting on authorization. I’m switching back to Rituxan hopefully because I personally feel slightly safer on the drug. However I can only imagine what this will do with the authorization of the drug. Ironically my last infusion my pharmacy had Rituxan on the approved list but not Ocrevus. It took my a while to get Ocrevus approved. Now that I’m switching again to a drug that is technically not approved for MS…

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