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Tag: living with MS

MS Foundation Transportation Assistance Grant

MS Foundation Transportation Assistance Grant

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I saw this and had to share it with my readers. The is the MS Foundation https://msfocus.org/ which is located in Florida. I’ve used them for many things from information to grants. They are a wonderful resource to people with MS. Transportation Assistance Grant https://msfocus.org/Get-Help/MSF-Programs-Grants/Transportation-Assistance-Grant The Transportation Assistance Grant program was established to help members of the MS community remain as independent as possible, and ensure all people with MS have the transportation necessary to get the best medical care….

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A family weekend

A family weekend

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I had the best nights sleep I had in a long time. I woke up once at 1am to use the bathroom and then slept right on through until 7:22 when the bathroom called again. That is a long stretch of time for me. I needed that!!! I could still sleep more truthfully but it was time to start my day. Plus my cell phone went off and I answered it. I normally go to the gym today but decided…

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I joined plenty of fish

I joined plenty of fish

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I signed up again. I honestly have no idea how this will work. Do I bring my aid on a coffee date? I mean really. I am not sure what made me join again. Once again it didn’t let me at first but then I was able to under one of my other email accounts. My first line in the about me section is I am a Multiple Sclerosis Warrior. I say I’ve had the disease for 21 years. My…

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Spasticity and headaches

Spasticity and headaches

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My headache has finally broke. I had it for three days this time. I thank modern medicine for keeping it quiet and letting me function. This time without a doubt it was caused by my spasticity. I felt the all too familiar feeling hit me on Saturday. I woke up and my entire back was in a tight knot. The one I describe like a spaghetti fork. It feels like someone took all my tendons and twisted them onto a…

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A good way to start a week

A good way to start a week

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Today is a good day. My dad and stepmom drove up from Florida this weekend. This is the first time my dad has been in NY in years. This will be the first time they are both seeing my condo but more importantly it is the first time I’ve seen my dad in a year and a half. I normally go down to Florida once a year but this year I was in Mexico and it was too much for…

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Intermittent fasting 5:2

Intermittent fasting 5:2

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I didn’t want to write this yet but it is a success story that I need to share. I’ve been doing intermittent fasting for over a year. I was doing a 16:8 fast. This is where you fast for 16 hours and eat during a window of 8 hours. For me that window of eating was 11-7. I was never a big breakfast eater so it worked well for me although I wasn’t really losing weight from it despite my…

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The Boston Market down the block

The Boston Market down the block

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Right down the road from where I live now is a Boston Market. This restaurant has significant markers to the history of my multiple sclerosis. It was this restaurant that I was promoted to general manager. It was here when I was on the phone with my mother when she asked me how my eyes were. The question was about my optic neuritis which wasn’t diagnosed at that time. That was later figured out after my diagnosis. I remember when…

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Backdoor chute muscles missing signals

Backdoor chute muscles missing signals

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I haven’t blogged about it but I’ve had serious back door chute issues this week. It seems the door is open and people come through unexpected or it stays closed and I can’t get them out. I went weeks with it open and now I went the complete opposite. My stomach was so bloated causing physical pain. It was great for my diet because I couldn’t over eat if I wanted too. My stomach could only hold so much food….

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Working out with MS

Working out with MS

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Overheated and under slept. Not a good combo to wake up with. I shut my AC off last night because I was cold. Of course it was ridiculously humid when I got out of bed. I had hours to turn it back on. I was up between the hours of 4-6AM and the time I feel back to sleep between 6-8 weren’t restful. Needless to say I woke up behind the MS eight ball already dragging my feet and having…

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My beautiful condo

My beautiful condo

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I was sitting here with my blog opened trying to decide what to write when both of my dogs jumped on my lap. This is where they usually are but sometimes my Marshmallow gazes out the window in the AM. I spent twenty minutes giving my fur babies puppy love and gazing myself out of my own window and lost any topic I wanted to write about. This is my favorite time of day. My body is tired and a…

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