I was talking this morning to my step sister about MS attacks or relapses if you choose. We were talking about someone undiagnosed for years therefore not on any MS disease modification medicine. I told her how lucky I was that I was quickly diagnosed but more so that way back then there was ANY medicine for MS. I strongly believe that if I wasn’t on some kind of medicine I would have been completely disabled within a window of…
I say this all the time, you can’t plan for things because you just don’t know. What doesn’t cause problems one day may be a gigantic obstacle the next day. One day you feel fine the next you can’t get out of bed. People around me always say it’s the weather or may say maybe you’re getting sick, I just know it’s the nature of the disease. A good example is when I was playing mahjong. I’ve had issues many…
I forget this story because I had a major attack and was diagnosed in a weeks time that the very first people I saw were like quick blips. I was reminded of this story when someone recommended me to see a chiropractor. Understand, this is MY experience and I am not knocking the whole world of chiropractors. I know many people who use them and benefit greatly. I had my major attack Valentine’s Day weekend in 1998. https://multipleexperiences.org/2016/07/15/the-day-i-found-out-i-had-multiple-sclerosis/ I was…
Gabapentin is an anti-epileptic used to control some types of seizures in epilepsy. It is used in multiple sclerosis to control dysesthesias (pain caused by MS lesions) and the pain caused by spasticity. (As per the National Multiple Sclerosis Society) I’ve been taking this drug for years. I’ve had it in a wide range of dosages from 100mg to 600mg. Probably about 4 or more years ago my doctor started prescribing me 300mg to take daily. I took them every…
A few years ago I got a pedicure, as the warmer weather always dictates we should. Except this year I caught a nail fungus on my foot. It started out on one toe, on one nail but didn’t stay that way for long. I saw my regular doctor about it and he gave me some type of cream. When that didn’t work he sent me to a podiatrist. He wasn’t comfortable prescribing anything stronger with me having MS. Well thanks…
After my upsetting week last week following weight watchers I choose to see my weight differently. I asked the universe for help. I immediately got to my life coach but then I got an email from my cousin. It was actually her second email regarding a book called <br /> . My cousin’s first email was explaining about the book before she knew I was struggling. The second email was following my blog post where she was more insistent that…
There are some days when I blog and I really have nothing to say and then there are some days, like last week, where I put up an embarrassing blog about my constipation issues with MS When the back door garbage chute isn’t working that I get a comment with a suggestion. Gary uses Nature’s Plus Oats n Honey Chewable wafers . What did I have to loose the chute wasnt working right. I placed an order for them. They…
I’ve been having such problems again going to the bathroom. This is an issue I’ve struggled with for years but continues to to get worse. Every time I think I found something that works it eventually stops working. My main problem is twofold. I can’t push and I can’t hold. Meaning I can’t get it out and if it’s coming out I can’t hold it in and I’m going to have an accident. Sorry to be so graphic but is…
So I was at my hairdresser yesterday, an appointment I never miss. I was alone with my van and wasn’t the least bit concerned. I knew I needed my walker not my scooter to go in so my aid and I had that in my car before I went. I was even prepared and got my other walker out of storage so I didn’t have to worry about bringing it back into my condo. I meet my mom at the…
I could have spent the day in bed. That’s the one thing two dogs and a nursing aid that comes early in the morning prevents. Not that my aid would mind or wouldn’t help me but my dogs would drive me crazy running between her and me. I can’t shake the exhaustion in the morning and the fatigue in the evening yet. I actually think this started from my rituxan infusion back in mid March, I believe I said I…
