Before I start my blog I want to wish my dear friend Hindi a Happy 50th Birthday. I love you. Have the greatest day. I’m melting. I am fully inside with the AC cranking but I feel the heat inside my bones. I was trying to transfer to my comfy chair this morning and it took me 10 minutes. I didn’t fall but my legs were like jelly. I kept having to repositioning myself to get the right stance to…
I had a very disappointing physical therapy session yesterday. I walked about a hallway and a half. The second full hallway still being my goal but once again escaping my grasp. I got tired and tried to sit for a second or two before I started my trek home. That was probably the beginning of the bad decisions. The upright walker isn’t easy to turn around with but even harder when you are trying to turn around to sit. There…
Good morning. Happy Monday. I had a nice weekend myself, lots of family. I started with my stepmom coming in from Florida. She came Friday afternoon with my younger sister. It was a really nice visit. I missed her hugs. I haven’t seen her in probably 2 years because of Covid. My little sister I see every few weeks, which makes me happy. It is hard to believe a year ago she was living in San Francisco. She hasn’t been…
I made it through this week. It was difficult at times but I stand by my decision to not bring in a substitute aide. I did have my regular aide in for the day yesterday because I had a doctor appointment. She was so helpful that she made herself available to be here during her vacation. I didn’t even ask her, she offered immediately when she realized I had an appointment. I went to the gastroenterologist. Always dealing with the…
I had a lousy physical therapy session yesterday. Actually pathetic was more like it. Lousy multiple sclerosis day and I have no idea why. My physical therapist says he wished he had a manic pill to cure MS. I would settle for a pill that gave me the day off or even an hour off. I miss being able to dance. I’m watching this tv show about dancing and I could never move the way they do. However what I…
Mood has improved from last week, I am happy to say. However I might have another tough week coming up. My daughter is away and my aide is on vacation. . I chose not to replace the aide anyway because I really hate having new people in the house. They don’t know where anything is, they are usually scared of the dogs and I have to make idle chit chat that can be exhausting. It puts too much stress on…
I’m so glad this week is over. This week was tough. Everything that could go wrong went wrong, but dumb shit. Like knocking things over, my Apple Watch not working for a day, my Bionic Gym stopped working, the new coffee pot was delayed in delivery, and forgetting things I had planned. It was just one thing after another everyday this week. I’m exhausted. I have had a migraine for 3 days now and although today is much quieter than…
I broke my glass coffee pot this weekend. This seems to happen every two years if not yearly. I do have to say the last time I wasn’t the one who broke it but I shouldn’t brag because I’m pretty sure every other time it was me. I don’t buy expensive coffee pots for this precise reason but I really hated my last purchase. I always put cinnamon in my coffee grinds and this basket constantly caused the caused the…
I am playing mahjong today for the first time since the coronavirus. I’m not sure how long I’ll be able to play but I am hoping I can sit for 2 hours at least. Unfortunately my wheelchair cripples me more than I’m already crippled. It’s the muscles in my core (a reader of my blog explained this to me). I’m reclined in my comfy chair, not putting strain on my muscles. In the wheelchair, I am sitting up. There is…
My neurologist and I decided we were going to switch to Kesimpta by my next infusion date. https://multipleexperiences.org/2021/04/26/possibly-switching-to-kesimpta/. My doctor wanted to start the process in July although my next infusion date isn’t until September. We entered the prescription into the pharmacy to start the process. It was less than 24 hours later that I received the denial from my insurance. The denial reason was that this medication wasn’t necessary and there may be other medication that can met my…
