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Tag: living with multiple sclerosis

The first kiss was the last kiss

The first kiss was the last kiss

I shared my story of my kiss last week. It was nice. The truth is I shut myself off from all relationships for over a year. That was my first kiss in 14 months. However, I’m pretty sure it was the last kiss with him. I’ve spoken to him a couple of times since then, but I think we’re going to be friends and that’s OK. When I turn this over to the universe I said the best outcome for…

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Neurologist visit day

Neurologist visit day

In three weeks is my official diagnosis anniversary of multiple sclerosis. Today I am going to see the doctor that made the diagnosis 20 years ago. I’ve said it before in many posts, I have two neurologists for my MS. One is a specialist in New York City and one is my long time original neurologist that I’m seeing today. People might think that’s ridiculous, why do I need two? The reason I ended up with two is because none…

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Things that go bump in the night

Things that go bump in the night

I had this post written title one other time. I wrote it about being convinced I heard Boomer, my English Bulldog, after he passed away. I realize now that the things that go bump in the night is usually me. The biggest obstacle I’ve had, since I moved in the condo, is I sleep on the other side of the bed then I use to for the last 25 years. I always slept on the left side which, for all…

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Exercise in a pool for MS

Exercise in a pool for MS

I went in the pool. Finally!!! I was the only one in there. I can’t swim anymore. My legs can’t kick. My legs actually can’t even get high enough in the water and I usually end up going under. The truth is I probably could do more but I was trying not to get my hair wet. Let’s be real, with multiple sclerosis there’s only so much energy I have. To go in the pool for the first time in…

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Setting of the med-alert again

Setting of the med-alert again

Back in June when I got into the program for the nursing aid, I also received a new med alert. So I’ve had this new one for quite some time and I like this one because the button it’s harder to push. Therefore I have had much fewer false alarms. By fewer, I mean zero. So I finally like this one. When I moved there weren’t many spots I was able to hook it up and so I had to…

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Monday Ramblings from multiple experiences

Monday Ramblings from multiple experiences

It’s usually my morning meditation that I decide what I want to blog about. This morning I fell back asleep during my meditation and I never got an idea of what I wanted to say. Right now I’m just staring at the water, hoping something will come to me. When your blog every day, I have to admit, some of my blogs become pointless. I have a feeling this is going to be one of them. I can tell you…

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Difficulty with the extreme cold and MS

Difficulty with the extreme cold and MS

Last week it in New York it was in the single digits before you add it in the wind factor. At that point it was the negative digits. I went out to eat at a restaurant with my family. The restaurant had open windows on all sides and even though the heat was turned up, it just couldn’t compete with the cold outside. The restaurant was freezing. We were there with cousins we haven’t seen in a while so it…

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It started out with a kiss

It started out with a kiss

Well add one part wine, brought by him, two parts attraction and a little honesty and what do you get? A kiss. I’m in sweatpants and a sweatshirt, not my most attractive look, but not expecting the nights events either. Maybe i would have shaved and put on some make up. Definitely would have changed into something more appealing but I neither expected this nor though it would happen tonight. Guess what? Interest laid on both sides. I gave my…

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Despite my MS, I am very happy

Despite my MS, I am very happy

I’ve lived in my condo officially two weeks today. I know I sound like a broken record and I apologize, but I just am so happy. I’m always blogging about all the bad things, living with multiple sclerosis and how tough it is, it’s just so nice to recognize the good things. Every day I say to my mom, I love this place thank you so much. I probably could say that every day and it would never be enough….

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Another one of those days, weeks, months with Multiple Sclerosis

Another one of those days, weeks, months with Multiple Sclerosis

Beautiful sunny day and I wake up with a headache. You know when you just haven’t felt right? That’s how I’ve been lately. I know, I know I have multiple sclerosis. Yes, that’s very true and the chances of it being just something with my multiple sclerosis is extremely high. However I just haven’t felt right. I’m not really sure what’s up. My doctor called with my blood work and again, everything is fine. I definitely don’t have Cushing’s, diabetes…

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