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Tag: ms challenges

Maybe a little leg improvement

Maybe a little leg improvement

I did an update on my phone this morning and my WordPress app has been running very slow. Plus I’ve been experiencing some glitches. I’ve now turned off my phone twice and rebooted the app for the second time. All to write a blog that I had nothing to say. I was off to a late start this morning. It’s 11:00 and I just completed exercising. I did two different chair programs. One for core and one with weights. I…

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Increasing aid hours or not….

Increasing aid hours or not….

I’ve said many times that I start to write my blog with one idea and it goes a completely different way. Sometimes the blog writes itself. This is what happened yesterday Summer heat hibernation and my own multiple sclerosis realization. I certainly wasn’t planning on addressing the idea of more aid hours. I’ve pushed back on this, against my family’s concerns, because I need some alone time. It’s probably why I never have a problem being home. I’m with someone…

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Summer heat hibernation and my own multiple sclerosis realization

Summer heat hibernation and my own multiple sclerosis realization

The quarantine is starting to lift yet this is the weather I start my hibernation. It’s starting to warm up and that means trouble for me and multiple sclerosis. Not just me, many of us. Between 60% and 80% of people with MS find that heat can cause their symptoms to worsen. This might involve a build up of fatigue, blurred vision, loss of balance or a worsening of cognitive symptoms such as concentration or memory. https://www.mstrust.org.uk/a-z/temperaturesensitivity I missed all my good months to…

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It is not easy having multiple sclerosis

It is not easy having multiple sclerosis

I had another rough night. This time I was alone. My daughter has been home for two months and the one night she’s out I really needed her. Unfortunately in my exhausted state, I fell. Not only did I fall but I was in a very bad spot. I was now exhausted and helpless. Not a good place to be. I spent a lot of time and energy maneuvering myself into a position of hope. Hope that I could possibly…

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How are you feeling? The truth about Parethesia

How are you feeling? The truth about Parethesia

When you live with a chronic illness I think you start to hate that question. People ask it all the time but they really don’t want the actual answer. Trust me, we very rarely actually respond with the truth. My go to answer is I’m doing ok. I can’t say good anymore because that is just too much of a stretch. I just answer with a vague I’m doing ok and change the subject, how are you doing? What is…

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A horrible and humbling outing

A horrible and humbling outing

My first social outing since March I was having dinner at my mom and stepdad’s house. It was the first time I was seeing my mom since a quick drive by in the beginning of April. It was the first time I was seeing my sister and brother-in-law since February. We were all getting together to celebrate my daughter’s 21st birthday which is on Wednesday. We were having dinner outside. She has a beautiful backyard but definitely has challenges for…

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The strange MS symptoms back again

The strange MS symptoms back again

I haven’t talked about my MS in so long. It hasn’t been too bad, thankfully. I did end up on the floor after I worked out in the evening. Totally Rocked This I had this great work out but it did make me extremely tired and my recovery wasn’t quite on point. So transferring into my wheelchair didn’t go so well. I didn’t panic, or cry. It took me a little bit but I eventually got myself up and I…

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Totally Rocked This

Totally Rocked This

Sometimes I even shock myself. Lagging all day. The only thing I ate was plain matzo with some grape jelly. I close my eyes quite a few times but never slept. yet everybody leaves my house, it’s all quiet, and I put on my workout gloves and work out. Not only did I work out but I had a great workout. That just makes me so happy. Do you have an average heart rate of 126, I mean that rocks….

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Sleep deprived

Sleep deprived

I had a rough night. I had a very upset stomach. It’s 10:00 in the morning and I already completed 8/12 standing. Every part of my body aches but my stomach feels better. I haven’t slept and wasn’t able to fall back asleep. I was consoled the whole time by my little Zoey. Cuddled up next to me ❤️❤️. MS doesn’t help without sleep. I will drag myself through the day. Good thing I have nowhere to go still. I…

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Bladder issues

Bladder issues

I’m not sure what exactly is going on with my bladder these days. I know I have issues, had them for years, but they’ve seemed somewhat worse over the last few weeks. I am not sure if I don’t have some kind of bladder infection. The problem is that is varies day to day, something bladder infection tend not to do. However between my water pills and Toviaz, who knows. Urinary tract infections don’t always cause signs and symptoms, but…

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