I have one of my neurologist appointments tomorrow. I have two neurologists. One is the specialist in NYC at one of the big hospitals. She prescribes my main MS drug, currently Rituxan, plus recommends anything in clinical trials like biotin or statins. She’s a great neurologist but I don’t consider her my main neurologist. That is the one I have the appointment with tomorrow. This is the neurologist that diagnosed me 21+ years ago and has been my doctor the…
Summer is a great season. It’s many people’s favorite. Being outside at the beach, on a boat, or at a pool basking under the sun’s warmth. However when you have multiple sclerosis, or any neurological disease, chances are it is not. As that temperature rises outside all of the MS symptoms act up making it a difficult season. This is called the Uhthoff Phenomenon. Uhthoff’s phenomenon (also known as Uhthoff’s syndrome, Uhthoff’s sign, and Uhthoff’s symptom) is the worsening of neurologic symptoms in multiple sclerosis (MS) and…
I had physical therapy in the morning. I didn’t do everyone of my exercises but I did all of my hard ones. My therapist and I cut it short because I actually started overheating. My cheeks turn red is my first sign. I start becoming warm even though I may or may not be doing much and then I start sweating. With that my MS symptoms get worse. This is why I rarely wear blush on my cheeks because I’d…
I’ve been really good lately. Especially since I switched to my wheelchair outside my condo. I went from falling almost daily to a couple of times in a month. That’s a big difference. It goes to show you how much the walking was really causing me to just exhausted myself. Yes I needed the van to make my life easier but I also needed to admit to myself the time has come and I really couldn’t walk anymore. It was…
The heat, the heat is here and it is not making life an easier. I played mahjong and I could barely hold myself upright by the end of the game and I was in AC. The heat finds it way into your bones and still manages to fatigue you regardless of where you are. I came home and collapsed. I was in bed by 9 and slept through the night until 4. I’m exhausted still. I sleep I’m exhausted, I…
It took me a long time to recover yesterday after swimming Back in the pool. I knew it would but my recovery time keeps getting longer and longer. I’m not looking forward to the day I don’t recover because I’m not planning on ever stopping exercising. I might have had to revise it drastically but I still do something to help myself move at least 30 minutes 5 days a week. Unfortunately the rest of the time I’m quite sedentary….
I went swimming this morning for the first time in months. It isn’t that I don’t love swimming, because I do. It is difficult to shower and change and do my hair etc. It takes a lot of energy to do all those things and I deplete most of my energy in the pool. Today I knew I wasn’t doing anything other than the pool so I knew it would be a good day. I swam 52 minutes and 58…
I saw this and had to share it with my readers. The is the MS Foundation https://msfocus.org/ which is located in Florida. I’ve used them for many things from information to grants. They are a wonderful resource to people with MS. Transportation Assistance Grant https://msfocus.org/Get-Help/MSF-Programs-Grants/Transportation-Assistance-Grant The Transportation Assistance Grant program was established to help members of the MS community remain as independent as possible, and ensure all people with MS have the transportation necessary to get the best medical care….
I had the best nights sleep I had in a long time. I woke up once at 1am to use the bathroom and then slept right on through until 7:22 when the bathroom called again. That is a long stretch of time for me. I needed that!!! I could still sleep more truthfully but it was time to start my day. Plus my cell phone went off and I answered it. I normally go to the gym today but decided…
I signed up again. I honestly have no idea how this will work. Do I bring my aid on a coffee date? I mean really. I am not sure what made me join again. Once again it didn’t let me at first but then I was able to under one of my other email accounts. My first line in the about me section is I am a Multiple Sclerosis Warrior. I say I’ve had the disease for 21 years. My…
