The heat, the heat is here and it is not making life an easier. I played mahjong and I could barely hold myself upright by the end of the game and I was in AC. The heat finds it way into your bones and still manages to fatigue you regardless of where you are. I came home and collapsed. I was in bed by 9 and slept through the night until 4. I’m exhausted still. I sleep I’m exhausted, I…
It took me a long time to recover yesterday after swimming Back in the pool. I knew it would but my recovery time keeps getting longer and longer. I’m not looking forward to the day I don’t recover because I’m not planning on ever stopping exercising. I might have had to revise it drastically but I still do something to help myself move at least 30 minutes 5 days a week. Unfortunately the rest of the time I’m quite sedentary….
I went swimming this morning for the first time in months. It isn’t that I don’t love swimming, because I do. It is difficult to shower and change and do my hair etc. It takes a lot of energy to do all those things and I deplete most of my energy in the pool. Today I knew I wasn’t doing anything other than the pool so I knew it would be a good day. I swam 52 minutes and 58…
I saw this and had to share it with my readers. The is the MS Foundation https://msfocus.org/ which is located in Florida. I’ve used them for many things from information to grants. They are a wonderful resource to people with MS. Transportation Assistance Grant https://msfocus.org/Get-Help/MSF-Programs-Grants/Transportation-Assistance-Grant The Transportation Assistance Grant program was established to help members of the MS community remain as independent as possible, and ensure all people with MS have the transportation necessary to get the best medical care….
My headache has finally broke. I had it for three days this time. I thank modern medicine for keeping it quiet and letting me function. This time without a doubt it was caused by my spasticity. I felt the all too familiar feeling hit me on Saturday. I woke up and my entire back was in a tight knot. The one I describe like a spaghetti fork. It feels like someone took all my tendons and twisted them onto a…
Right down the road from where I live now is a Boston Market. This restaurant has significant markers to the history of my multiple sclerosis. It was this restaurant that I was promoted to general manager. It was here when I was on the phone with my mother when she asked me how my eyes were. The question was about my optic neuritis which wasn’t diagnosed at that time. That was later figured out after my diagnosis. I remember when…
I haven’t blogged about it but I’ve had serious back door chute issues this week. It seems the door is open and people come through unexpected or it stays closed and I can’t get them out. I went weeks with it open and now I went the complete opposite. My stomach was so bloated causing physical pain. It was great for my diet because I couldn’t over eat if I wanted too. My stomach could only hold so much food….
Overheated and under slept. Not a good combo to wake up with. I shut my AC off last night because I was cold. Of course it was ridiculously humid when I got out of bed. I had hours to turn it back on. I was up between the hours of 4-6AM and the time I feel back to sleep between 6-8 weren’t restful. Needless to say I woke up behind the MS eight ball already dragging my feet and having…
I’ve been staying home a little more lately because I haven’t been feeling great and the weather. I’m sleeping a lot more and even when I get out of bed I’m forcing myself up more so then wanting to get up. It is a horrible feeling to be so tired after you’ve slept for 10 hours. If anything I’m forcing myself to get out of the house. I feel like all I’ve done is blog about my MS symptoms lately…
I’m always preaching about adapting and I had to make another adaptation for myself. I bought a commode to leave by me to avoid the “accidents”. Too many times I’m just steps sea and it happens. I’ve had the order for the commode since I was in the hospital last year with cellulitis. I kept saying I didn’t need it, my bathrooms were close enough. My caseworker asks me every month because it was recommended by the nurse at my…
