A quick short note today. Had occupational therapy this morning kicked my ass. Such a difference from last week of what I was able to do. I can’t be too upset because I know this routine. Some days are better than others and today wasn’t a great day. It is getting hot outside and the OT room was warm. I was sweating and I was appropriately dressed and doing very little. Another one of my MS symptoms is my body…
I’ve been run down lately. The words “I’m tired” have once again been part of my everyday response to “how are you”. I’m not sure when I became so tired again but I know I’ve started canceling plans because of how I feel. A beautiful weekend and I’m inside with all my windows open and a great view. Sometimes you just need to rest. The only thing is it doesn’t really help. Fatigue is a strange thing because it isn’t…
It is four steps from my bed to my bathroom. I always had this goal to be able to make it to my bathroom unaided. To get up and safely walk to the bathroom. A few years ago I could, why couldn’t I do it again? I have a progressive disease, that’s why. I could probably stumble through the four steps and make it to the bathroom but the word safely wouldn’t be in that sentence. I have fallen even…
It’s getting hot outside. The summer is coming and my hibernation will begin. Most people can’t wait for the nice weather and the glorious heat of the summer, I’m not that person. I have multiple sclerosis and I am heat intolerant. Heat or high humidity can make many people with multiple sclerosis (MS) experience a temporary worsening of their symptoms. Doctors believe that this occurs because heat causes nerves (whose myelin covering has been destroyed from MS) to conduct electrical signals even less efficiently….
I was asked if I’d write a paragraph or two about contacting the MS Foundation for help with purchasing my handicap van. I jumped at the chance because they have helped me a few times over the years. They are another amazing resource to those of us with MS https://msfocus.org/. This is my rough draft I’ve was diagnosed with multiple sclerosis over 21 years ago. It has been a long road with many speed bumps along the way. I first…
I had another accident yesterday as I was sleeping. I was sleeping, how horrible is that? I was in the shower cleaning myself at 12pm. WTF????? This has been a brutal MS week for me. Between being stuck on the floor A honest look at an MS bad day and accidents this has been an extremely dis heartening week. Yesterday I scratched up my car. I’m still in my reserved handicap spot but it isn’t the van spot. I have…
I have many things in place that keep me safe from falls on a daily basis and I thought today I’d list each one: Hooveround MPV5 this is my everyday motorized wheelchair that I use all the time outside my condo and sometimes in my condo. Plus it is used always with my handicap vehicle. My drive rollator walker. I use this around the condo if I feel strong enough. 3. My Med Alert system. I wear my bracelet everyday….
This is in regards to a number of my blog posts like A honest look at an MS bad day orBackdoor chute suggestion worked. I talk about the embarrassing symptoms that I have that it hopefully helps someone else to feel less embarrassed. It is another part of my disease as out of my control as my gait and my numbness. It isn’t something that I can control anymore than I could control another MS symptom. I get why we…
I was fatigued yesterday doing my normal routine in the morning which involves cleaning up after my dogs, feeding them and morning grooming for me. I had a goal to workout. I knew I should have waited a bit since i was already fatigued but I wanted to get it over with. On top of this my stomach was bothering me. I know better for all these reasons but I pushed it anyway. Within 10 minutes of my chair Zumba…
I went into the gym in my building this week. It isn’t a large gym but they have more than enough to get a good workout. I have been trying to do some weight lifting exercises in my condo over the weekend. The problem is I’m exhausting myself and my arms and I’m alone. It is causing problems for me when I’m trying to get around. Not the safest thing for someone with MS to be doing. I decided to…
