I was thinking the other day, what if there was a magic pill to cure multiple sclerosis? What if I can take something that not only stops future disability but cures current disability? What if tomorrow I could actually walk again? I have spent half my life with MS. It is part of my identity, even though I pretend it isn’t. Who am I without my disease? I have this recurring dream that I’m working but still collecting disability. In…
I have to admit I am wrong this while I am doing my bionic gym. It is very difficult to do this while you are shaking. Forgive me In advance for grammar and spelling errors more than my usual. I know last week I told you about the wonderful aide I had that covered for my full time aide on vacation. https://multipleexperiences.org/2021/12/10/the-replacement-aid/. It turns out on Monday, my full time aide said that she will be going to 3 days…
We arrived at Monday once again. I feel like I am on a fast track through these days, weeks, months and years. That is saying something considering most of my days are spent in front of the TV. I am far from highly stimulated most days. Yet the days are going fast. I know I’ve said this many times before. I’m sorry I’m repeating myself. I just find it amazing sometimes. I got to spend a few hours with my…
I’m doing better with the spasticity. I was never a person who thought Baclofen really did anything. I’ve taken 10mg a day, as preventative, for as long as I can remember. Well increasing it to 20mg twice a day has definitely did something. The constant dull ache I’ve had in my lower back has almost completely subsided. I am able to bend my legs to get up more often than not now. I’m not cured but doing much better. I…
I haven’t talked too much about my weight over the last few months. I did write this post https://multipleexperiences.org/2021/10/04/moving-the-scale-downwards/ as I was making progress in weight loss. I started in July to finally make changes that has finally seen results. So, what did I do? Well, some time ago I wrote about a book my cousin recommended. https://multipleexperiences.org/2019/04/20/the-obesity-code/. It was about a book about how controlling glucose affects weight loss. I always knew that there was something to this but…
Well another episode started off an otherwise lovely evening. My mom and stepdad were coming over for dinner and to watch Yellowstone. We missed last week’s episode so we were in for a double feature. It was just about 4:00 when I hung up with my mother. I was getting up to feed my puppies. I didn’t transfer to my wheelchair well. I ended up sliding down to the floor. When I got up I would have taken the increase…
Well yesterday was a visit to my neurologist. I want to thank my pseudo uncle for driving my van. I am not so comfortable driving on the parkways anymore. My first words to my neurologist were “did you miss me?” I have been coming to see him for almost 24 years. I just turned 50, that is almost 1/2 my life. He has been on my multiple sclerosis journey from day 1. He was the neurologist that told me I…
Good morning. Happy Monday. I’m not sure why I care if it’s a Monday, Tuesday or a Saturday. My day doesn’t vary all that much I need to keep track of the days of the week so I appear at the right activity planned. I mean Monday morning at 9am is occupational therapy. I’d prefer not to answer the door in a nightgown with bad breath. However, I’m sure I will one day sleep late convinced I didn’t need to…
I had a really good birthday day. I woke in a very cheery. I just stayed that way all day. How could I not? Every second I was either on the phone with someone wishing me the best or answering a text. I felt so loved. I was exhausted by the end of the evening from talking. However, I just felt enveloped in a gigantic heart bubble. It was pretty amazing. Worth turning 50. On Tuesday, my aide was off…
First I need to give an update on my Bionic Gym and spasticity experiment. In a quick summary I was paying close attention to how my spasticity was after I used my Gym. My blogs during the week discussed it a little further. https://multipleexperiences.org/2021/11/15/bionic-gym-helping-with-spasticity-my-experiment/ and https://multipleexperiences.org/2021/11/17/time-for-a-hair-color-change/. Please remember this is MY experience with Bionic Gym. https://bionicgym.com/?rfsn=6087517.2f5823 The company makes no claims to help with neurological issues. That being said, 100% it made a difference and that’s exactly what I was…
